August 30, 2013

Friday-Pretty good day, thanks to pain meds.  Cody did well, only woke up once during the night for medicine.  He ate soup again for lunch but then had a normal dinner tonight.  He is doing MUCH better than I expected.  Looking forward to a quiet weekend.  Enjoy yours!!

August 29, 2013

Thursday-So one tooth was removed today!  The one that caused all the pain was extracted. I was in the room soon after they were finished and waited for him to wake up.  It went pretty smoothly and Cody is taking his pain meds.  He drank a milkshake and had some soup.  Again, thank goodness for pain meds.  The oral surgeon decided just the one needed to be out so we were spared, thank goodness.
It was a long ride in and an even longer ride home.  We came home to a white bag at the front door.  In it was a tooth made out of paper with a $20 bill inside.  I did not know the tooth fairy came during the day and left money without the tooth.  And to a 20 year old too!!  We are loved and very lucky!!
So glad today is over and we are on schedule for chemo on the 9th.

August 28, 2013

Wednesday-Well, as expected, Cody's platelets have recovered nicely.  He will be getting his wisdom teeth out tomorrow.  Two for sure and possibly four.  I am worried as any mom would be.  We are going to have it done by one of Sloan's oral surgeons but at a different location.  It is outpatient and he will be put to sleep.  Gonna be a rough few days but he will feel better once this is behind him.

I went to work today to see my friends and help out a little.  I have the best friends/colleagues there.  I am blessed to be at SH.  It amazes me.  Truly blessed.  I spoke to a good friend from Florida tonight too. Always there for a laugh..thanks, GG!

Hopefully tonight we can rest well and be ready for tomorrow.  Pray for no complications and not a lot of pain for my boy...thank you...xoxoxox

August 27, 2013

Tuesday-Lazy day.  We both did not sleep well and were up very early.  We went to the local lab to get his blood drawn.  Unfortunately we still do not have the results back.  That is the downside of going locally.  So hopefully we will hear in the morning.  I would be surprised if the counts were not recovering.  This was supposed to be a chemo week so they should be going up for sure.
Cody had a visit from his friend today and then he went to see his soccer coaches again.  He enjoys that.
So early bed for both of us tonight.  Hoping for a good night of sleep.  Sweet dreams.

August 26, 2013

Monday-I was up early and got to work on my classroom.  Thanks to Bernadette and Allison for helping me!!  I feel much better.
Cody did well today.  He feels pretty good.  He went to hang out with his high school soccer coaches during the team tryouts.  One of his coaches had a t-shirt for me.  They are really good guys and I am glad he could just hang with them this evening.
I know things are tense and at times, we butt heads.  That's the normal part of it all, right?  This is what 20 year olds do.
On a great note, we talked to Casey tonight.  He is in sniper school and seems to be enjoying it.  He gets to hide in the woods and shoot each other with fake bullets.  Just up his alley...It is always good to hear his voice and his laugh.  I miss that.
Tomorrow, blood work..say a little prayer for good counts..thanks all...Good Night!

August 25, 2013

Sunday-the day just ran away from me.  We took a ride to Port Washington to see the house Cody's uncle might buy.  Then we went for ice cream.  Cody insisted on trying to ride his bike...and he did!  19 miles.  His other uncle's company does a race in October that he thinks he can do.  It is 30 miles through the city.  You all know how I feel.  He keeps saying I am being negative and I cannot convince him that I am just worried about his health.  That is what scares me.  He interprets as any 20 year old would, I suppose.  Ugh!
One of the guys he used to work with at the coliseum wants to see him.  So nice of everyone.  He is going to stop over at the soccer tryouts tomorrow to see his coaches. They have been asking about him too.   He misses soccer the most, I think.  Breaks my heart to hear him say that...
Tomorrow I am heading to work.  I have a few friends coming to help me get it all done in one day.  Just think it is better to go now when things are calm, so to speak.
Hope everyone had a nice weekend..xoxoxoxo

Saturday, August 24, 2013

Saturday:  I did not write yesterday because we got home too late.  That is a good thing.  We hung around most of the day.  We left around 4 and went to Riverhead Racetrack!  Moira joined us and we had a fun time.  The weather was awesome!  We stayed for the whole thing which ended in a school bus demolition!  Cody had fun and Moira enjoyed it.  Cody feels pretty good!
Looking forward to a relaxing Sunday.  Enjoy yours!

August 23, 2013

Friday-for some reason, we were both up very early.  So we decided to get a head start and got to the city rather quickly.  Matisse and his mom and grandparents were there.  For those of you that do not know, Matisse is Cody's first cousin on his dad's side and he has the same leukemia.  Very strange.  He is doing well, he did not need a transplant thank goodness.  He is doing chemo in the maintenance phase and is tolerating it.  He is 5 years old.
Cody got his blood work and the platelets are coming up.  The teeth extraction is scheduled for Thursday.  We will do blood work out here on Tuesday.  Keeping our fingers crossed that all stays the way it is so he can get his teeth out.
He was in good spirits today making his famous homemade salsa.  Staying in tonight and trying to find a movie.  Once again, thank you for all the positive thoughts and prayers...each time I see one, it brings me to tears...we are blessed.....have a good Friday night.

August 22, 2013

Nice day to be home. You come to appreciate doing nothing more.  I did get out this morning and went to check out the classroom.  I met with my principal and trying to map things out.  The room looks good, the packers in June did a great job, you know who you are!!  I will get in next week to set up, not too worried about things there.
We ran some errands around lunch time and Cody took a nap.  It always worries me when he naps or tires easily. I guess this is par for the course.  But that is what we mothers do...worry.
I know I keep saying this...but just amazed at the thoughtfulness and genuine warmth from my friends here.  Just touched in ways beyond words.  Thank you.
We had dinner with friends, thanks Jean and Mike, and are ready to call it a night.  Off in the morning for blood work.  Keeping our fingers crossed for a short and easy morning.  Sweet dreams and lots of prayers..xoxoxo

August 21, 2013

Wednesday-so no tooth extraction tomorrow.  His platelets were low and he actually got a transfusion today.  We are hoping all recover sometime next week.  We are going in on Friday to check his counts again.  We got home around 3:30 which is an early one for us.  He ate well today and is waiting for me to make him dinner.
So no chemo next week and we will resume 10 days after the tooth extraction.  I hate the not knowing part of all this.
Looking forward to a quiet evening home and a good day here tomorrow.

August 20, 2013

Tuesday..it was nice to be home and sleep in our own beds.  So quiet too!
Cody was up early too and ate well today.  He hung around the house all day and I did a few errands and laundry.
This afternoon we drove to Moira's to get our dogs.  We are so lucky to have her.  The dogs are even luckier!  Cody's fish did well too.  Our friends, Craig, Sue and Emily take good care of them while we are away.  They had turned on the ac for us so it was nice and cool last night.  We are blessed in so many ways.
We are so grateful for all amazing support we have.  We get cards, gifts, texts, emails, food, treats, offers for all kinds of help and phone calls from everyone. I shed a tear (or two) each time I receive something or have a conversation or read a card or text.  There are not enough words to describe how I feel.  I am truly touched.
Tomorrow we head in to Sloan for blood work and to figure out the next step for Cody's wisdom teeth. I am hoping they can come out Thursday but I kinda think his body just won't be ready for it right now.
I will update again tomorrow night...sweet dreams to all.
Jazzy was happy to be home!!

August 19, 2013

Monday-So we made it home. We had a nice drive home.  Cody enjoys his music so he was serenading me and moving a little.   Cody's counts continued to creep up and were enough to send us home.  He is no longer neutropenic so he wanted KFC for dinner...his choice, not mine.  He met with physical and occupational therapy today. They told him no lifting, bending or twisting due to the cancer that is in his lower spine.  I have had concerns about all this and was glad they reinforced it to him.
I think being inpatient these few days was hard on both of us.  There are so many memories there.  We were happy to see lots of old drs, nurses and staff there.  Cody is very popular.  It is just sad and draining to be there.  So many sick kids, teens and babies.  The baby next to us cried a lot and it breaks my heart to hear that.  So emotionally, I am spent.  It is all so overwhelming.
We have a new plan.   We may never know what caused the fever but it is evident that the wisdom teeth get fired up once his counts drop.  So they need to come out.  Right now, the plan is to take them out on Thursday IF his platelet count goes up enough for it to be safe.  There is an oral surgeon in the city afilliated with Sloan and it is done outpatient with some propofal to put him out.  Chemo will need to be delayed 10 days to allow the mouth to heal.  If his platelets are not where they need to be, then we will try for next week, again delaying chemo for 10 days after the procedure.  It is all up in the air right now and will depend on Wednesday's blood work.  It scares me to stop the chemo, but his dr said it is ok right now to do that.
We also found out that the scans will be done sometime between the 5th and 6th cycle.  At that time, there will be surgery to remove the tumor if needed and possibly radiation.  Radiation would be for 31 days, outpatient.  Again, lot to work out.
So lots to do.  I need to get to school to start on the room.  Trying to get things worked out here.
Here are a few pics from the stay.  The one of him and I is not a good one but you can see Cody being silly, as always.

August 18, 2013

Sunday- very quiet day here which is good. Cody got to relax. Our friend, Moira, aka dog sitter, drove up for a visit. It was nice to have her. I got out for a walk and then we went back out for a quick bite.  We are lucky to have her, our dogs, even luckier!!
Cody is feeling better but his white count is coming in so slowly. He is now .02. He got his neupogenshot and hoping for a bigger jump tomorrow. He can't go home until it's .05 which will also mean his ANC- absolute neutrophil count comes in. These both fight infection. His cold seems to be getting better too. Now just have to work on his wisdom teeth. Tomorrow his dr will be here so I am sure I will have more to report then. He's still eating soup and smoothies. Thank goodness for the pain meds.
Hope the weekend was good. Until tomorrow....

August 17, 2013

Saturday: It's kinda hard to sleep here.  The nights seem so long. Cody was blowing his nose during the night. In the morning they swabbed him and he has rhino virus, which is the common cold. So on top of everything, he has a cold. He's kinda cranky. He's taking pain meds for the wisdom teeth. Still no answers for the fever. The cultures from his blood are still negative. The drs are thinking it's the teeth or we just might not know. He was getting the neupogenshots once every 10 days but looks like it's going to be everyday now.  This will make his white count recover. It's still .1 as of this morning.
He is eating soup and smoothies. The antibiotic he's on was switched to cover a wider range including any infection that might be in his mouth.
Still hoping to go home Monday but have to see. Thanks for all your notes, texts and phone calls. We love all of you. Xo

Friday, August 16, 2013

Friday evening- busy day here.
We got to our room around 3:00 am. Cody slept through a lot but kept getting woken up.
The antibiotic had changed and I think he is starting to feel better.
His hemoglobin was down and it did not recover after the 2 transfusions so he received two more. He also got platelets.
His dr came in and is thinking he needs to get that wisdom tooth out. Hopefully that can be done before we begin the next cycle of chemo.
His concern is with Cody's reaction to the chemo.  This worries me. Just thinking about how much his body can handle.
Cody did not eat too much today. He is trying but choices are limited. I got a few snacks at the store. The candy cart just left. This guy has been providing candy, chips, cookies, juices and snacks to kids on M 9 for 25 years. Amazing. He comes with a few volunteers and deliveries treats to all the patients. If you know Cody, this was a huge pick me up!
We are here through Sunday. I am thinking we will go home Monday. It will be quiet and he can chill and feel better!
Thanks for checking in. We are grateful for all the support from our family and friends, near and far. Love you all!!

August 16, 2013

Friday- I should have known that I wrote too early last night. I was on the phone around 9 and noticed Cody's cheeks were red. I asked him to take his temp and it was 101.6. So off we go.
It was a long night. He got his blood, 2 units. His hemoglobin was 5.2. They started antibiotics.
We are on the 9 th floor. I am in gown and gloves because of a bacteria he had during transplant. That's ok as it gives us a private room.  The plan is to treat with antibiotics until his counts are more stable. I will write again later. Thanks for reading.

August 15, 2013

Thursday-We were up early and off to do the blood work here on Long Island.  As expected, Cody needs blood so we head to Sloan tomorrow.  Cody is more tired that usual so that must be part of the problem.  He hung outside for a few when my friend, Mary and her son, Kevin stopped over.  I know he looks really pale.  He will feel better tomorrow after he gets some blood.  He tried to make some pepper sauce with the peppers he has been growing.  We have not taken such good care of them but they grew.  We have to perfect the sauce now.
Just chilling and enjoy the nice weather here on Long Island.  Can't believe summer is coming to an end.

August 14, 2013

Wednesday-busy day and a sad one.  Did a few things around here with dad and then he left.  I really wish we lived closer.  I know my stepmom missed him and we are both glad he made it home safely.  It was really great having him here.  My sister in law, Veronica just made her plan reservations.  She is coming on September 2 and will be here to help out those first few days I go back at work-those superintendent conference days.
Cody feels good but continues to take his naps.  He gets tired easily.  For example, he drove to the airport but didn't feel like driving home. He is eating which makes me happy.  Tomorrow we go for blood work and we might need to go to Sloan on Friday depending on his counts.
Thanks for reading and for the continued support to all of you.  I see the list of followers increasing.  I feel blessed to have each and every one of you.  xoxoxoxox

August 13, 2013

Tuesday-well, dad's visit ends tomorrow.  It sure goes fast.  It was really nice to have him here.  I will be waiting for him to come back!
Today was a rainy day and we relaxed.  I did get some groceries and we made dinner here since Cody could not go out to eat.  We went to the movies tonight and his friend Nikki came along.
Cody seems to be feeling good.  He is still eating and is not nauseous which I think is all good.  We will go for bloodwork on Thursday. If needed, we will then go in on Friday.
Today is Nicole's birthday.  Happy Birthday to ya!!
Until tomorrow.....good nite all.

August 12, 2013

Monday-so we had some more visitors today.  Cody's cousin Katie visited us.  We picked her up and went to the lab to get Cody's blood drawn.  We left and decided to get a new fish so we drove to another fish store in Garden City/Westbury.  We went into the store and Cody was kinda leaning on the fish tank and needed to sit down.  There was a step ladder there and so he sat for a few.  We decided to go eat to see if he felt better.  I was for sure he needed blood. He felt better after lunch.  We went back to the fish store and picked out a cool fish.  He seemed fine the rest of the day. Katie left and we  visited with our neighbors, Sue and Emily and then decided to go eat.  Cody got the call at the restaurant that he was once again neutropenic.  He went ahead and ate but asked the manager to make sure the food was prepared with a bit more attention to cleanliness.  His hemoglobin is still good...for now.  We are to get another blood test on Thursday and it can be out here, and most likely go to Sloan on Friday.  Once he heard this, his spirits lifted right up.  We chilled at home and his friend Nikki came over.  We played a few games with grandpa and had a nice time.  Hoping for another good day tomorrow!
Please know, once again that I appreciate all of the support and thoughts from near and far.  I am lucky to have a family here and I feel the love from my family that is not here.  It has been great having dad here and maybe next time my stepmom will join him.  I appreciated my brother's visit and am wishing for my sister in law and the kids to come too, maybe with mom.  Casey and Nicole got a pass and visited and I wish that could happen more often.  It is difficult being so far apart especially during times like this but so thankful for our time together.  We are lucky to have so many on our side.  Thank you all for that.
Again...thanks to all of you for your continued support.  It is what helps me get through.  I mean that...xoxoxox

August 11, 2013

Good day and Cody needed lots of sleep.  His dad's friend, TJ was still here so he came and hung out and we went to lunch.  It was a nice visit with him.  He left when I went to get my dad.
Cody decided to stay here and get a nap in.  Hung out with dad for a bit and woke Cody up and he was good to go.  He actually drove us out to show Dowling (his college) to show Grandpa and he gave us a tour of the area.  He was very upbeat and enjoyed it.  He picked a spanish/mexican place for an early dinner.  We came home and relaxed and watched some TV.  He was in a really good mood.   I am happy for that.
Sweet dreams to all and I will update tomorrow.
Thinking about a great friend tonight. She and her family have deal with some medical issues with her father in law/grandpa/dad....prayers always.
Keep my Uncle Joe in them too...he is still recovering from his bypass surgery.  Stay tough, Uncle Joe!

August 10, 2013

Busy day yesterday which I did not anticipate.  So like I said, I have been forced to welcome my ex and his family back into my life for Cody.  Cousins, aunts, uncles and the grandma call me when they want to see Cody.  Saturday my ex was here with his friend all day.  His friend, TJ is a childhood friend and I have known him about 25 years too.  I do not keep in touch but we have called and texted from time to time when he wanted to talk about Cody. He was actually a welcomed visitor as he helped me do little things here.  Moira brought Xena back (Thank you MUCHO!) and then I did the de-acsessing of Cody's mediport.  I did pretty well, I think.  There are two there and only one hurt.  I ran to the store to get lunch stuff and then I was told that Uncle Jim and his girlfriend and Matisse would be here too.  Jim had some errands to do so his girlfriend and Matisse were here all day.  Now I had thought it would have been quiet here so I could clean up and get ready for Dad's visit.  I was hoping I might be able to just take a short nap once Cody and his dad watched a movie.  Well, none of that happened.  Cody tried to hang and basically sat on the couch.  At times we were all outside and he did not even do that.  Finally at 4:30 I told him he should really take a nap. He slept till around 6:30 and just his dad and TJ were here.  We went to Buffalo Wild Wings for dinner.  Cody was ok but things like getting dressed and just walking to the car, wears him out.
Now it is Sunday and I am cleaning.  His dad left but TJ is still here so he will come here before he leaves.  I will pick up dad around 1:30.  Looking forward to that.
Enjoy your Sunday everyone and I will write tonight...looks so pretty out!

August 9, ....again

So here is the pic from the visit with his nurse, Erin that used to work at Sloan....love her and love those smiles!

August 9, 2013

Friday..home sweet home.  This week felt like forever.  Cody got all his meds today and did a lot of sleeping.  He is feeling the effects of the chemo.  When he finally woke up around 1:00, his dad and his dad's friend were there.  We ventured down to the cafeteria for lunch.  They let him leave the floor when the chemo is finished.  So he drags his IV pole and off we go.  Unfortunately, he did not want much to eat so nibbled on a salad.  After lunch we went up to the 14th floor where there is a huge recreation room for adults and even an outside patio.  (Still hard for me to remember he is an adult).  There is always something going on there.  So he and his dad and the friend, TJ played pool.  I could tell it was exhausting Cody.  He sat when it was not his turn and had trouble with the stick.  But he played.  When we finished, he was back in his bed and needed a nap.  I went and sat with TJ and we shed some tears and talked about life and a lot of other things.  He is a good guy and very sweet.  He drove here from Pittsburgh to see Cody.  He and Cody's dad are coming here tomorrow.
We left Sloan today at 5:30 ish and got home in a little over an hour.  Cody had an appetite so we stopped at Chipolte, his choice and he ate well.  It saddens me when he sees his friends from high school.  He saw one of his soccer buddies and there is Cody carrying a backpack full of fluids with IV tubes connected to his chest.  He does not seem embarrassed but it has to hit him. Plus he is there with his mom....again. I try to step away so they can talk.  I do hear him telling his friend about the chemo and stuff.  He is the brave one.
Tomorrow I will be the one de-acsessing his mediport.  I will be the one that takes the needles out when the fluids and meds finish.  It will be my first time doing this but I can do it.
He said "it feels so good to be home".  And he is right.  He crashed a little while ago and I am not far behind.  Thanks for all the support and for always reading my blog..xoxoxoxo

August 8, 2013

Today was good.  As good as a day of chemo can be.  There was a little nausea and body aches.
I did a lot of reflecting today. Sloan is a beautiful place on the 9 th floor.  Everyone that works there is amazing. I cannot express how supportive everyone is there.  But it is also depressing.  There are moms navigating their strollers with a child hooked up to an IV pole, making the maneuvering a bit trickier.  There are teen aged kids sitting and lying on their parents' laps trying to keep themelves from vomiting.  There are young men with prosthesis legs.  There are beautiful young women with their bald heads (and they all can pull it off) and others with very pretty scarves on their heads.  Then there are the parents.  They all have a certain look on their faces.  We smile at each other but it is a comfort smile.  You can hearw a certain panic in all of our voices.  We fear the unknown.  We would trade places in a heartbeat so that our children would not have to go through this.  Yesterday I watched a teen boy across the hall from us experience some trauma after his bone marrow biopsy.  The room was quickly filled with medical staff and the dad and grandfather were shuffled into the hall.  I got chairs for them and quickly closed our curtain and used my body to block Cody 's view.  It is an emotionally draining place.  The chemotherapy comes with huge warning labels on the bags and you sit and watch it slowly drip into your ailing child.  It breaks my heart.
Tonight we got back early to the Ronald house.   Cody is just wiped out.  No dinner out, he wanted McDonald's.  Not the best, this I know,  but he was craving it.  I am cleaning the room.  There is no housekeeping here.  That keeps the rates low.  I run down to the dining hall.  It is packed with families and looks like everyone knows each other.  There is food donated from a local pizzeria and  a dj is blasting music.There are some of the same faces we see at Sloan there grabbing a bite to eat. I cannot tell you the feeling I have to be doing this again.  Having volunteered the past 2 years at the Ronald house in Nassau county, this takes on a whole other meaning when you are the one accepting the generosity of strangers.
I am not trying to depress anyone, just needed to to express some thoughts.  I appreciate everyone reading.  This helps me too.
Praying for a good night and a good day tomorrow so we can get home for the weekend.

August 7, 2013

First of all, I would like to say " happy anniversary" to my dad and stepmom. I hope you had a nice day!
Today went off without a hitch.  These are some long days. We are tired when we get up since we have to get up every 2 hours for the bathroom.  Thank goodness for urinals.  Cody comes home with a huge backpack of fluids so it makes it easier than trying to get up and to the bathroom.  We met a new dr on the team today.  She was nice. Chemo was finished by 1:00 so we made it to the dentist.  There is a dentist in Sloan that looked at his wisdom teeth.  They have been causing some pain.  Not doing anything now but keeping it clean.  We went downstairs for lunch and got back to the room and Cody got a visitor.  It was his nurse from transplant, Erin!  He loved her.  I cannot post the pic from here but I will keep trying.  The smiles were amazing.   I am so glad she came.  Cody 's cousin  was here today too. Cody did his first physical therapy today too.     Then his friend Ben met us all for dinner.  Despite the reasons we are here, it was a good day.  I get upset when I talk to his therapist though.  She is really concerned and offers her thoughts on some of his behaviors and I get upset when I think of the big picture.  I will remain positive, like he is.
We are settled in the room and calling it a night.

August 6, 2013

Tuesday- today was a good day and went as to be expected. I did get alarmed because one of the side effects of the chemo is confusion.  I brought it to the nurse's attention. Every little thing alarms me. Cody was tired and slept in the morning and the later in the afternoon.  His friend Nikki made the trip in and I know he was happy to see her. We played a few games in the room and he rested.  The good thing is that he is still eating. I went to the counseling center to speak to a psychiatrist there. I was good.  We will meet again in 3 weeks and do more evaluating. We had lunch downstairs and went to dinner with his dad.  Oh it was quite cozy just the three of us.  Just relaxing in our room and getting ready for bed.
Ohhhh. Cody had a favorite nurse that he used to talk to during the night when he was so sick.  He loved Erin!  She works at the Hospital for Special Surgery now.   I was just sitting around and made a phone call and found her!  She is a sweetie.  We will see her this week.  Cody will be thrilled.
And we do it all again tomorrow.  Tomorrow is a dentist appt and physical therapy for Cody.

August 5, 2013

Monday- so we got in nice and early. We met with Dr. Wexler and we were both misinformed. We both understood the protocol to be the same chemotherapy drugs for the 3 cycles.  But we were told this was the 5 day regiment with the other drugs. This is the week for the etoposide and ifosfamide.
These are tough drugs but other side effects.  He handled them well. He is getting tons of hydration and has the hydration for the night.  I will need to wake him every 2 hrs for urination.  They need to flush the drugs out. He is also getting the medication for his bladder. With his history of the renal functioning weakness they are particularly concerned and watching the output.  He ate well today.  He met with his psychiatrist and then we both talked.  There are some things we need to work out. Time, I keep telling myself.
The doctors also discussed radiation and surgery for the tumor removal which will be discussed at a later date.
We are settled in the Ronald house and will be here for the week.
Thanks for all the messages.  I feel the love.

August 4, 2013

Sunday-Cody woke up saying he wanted to relax today and he did.  I was running around here and there and getting things organized and packed for the week.  We got a quick lunch and Cody's friend came over.  We had TGIF's later in the day with Moira, our dependable dog sitter and good buddy and then got a delivery of amazing BBQ.  We love our friend, Allison!
I got a few minutes to myself at Macy's and was trying to find a few shirts.  No such luck.  I need a new place to shop I think.
Just relaxing now and watching Shark Week with my boy.  We are ready for the week.
Thanks again to all of you for your continued love and support.  xoxoxoxox

August 3, 2013

Saturday: Busy day with Cody's cousins here and then we all went to dinner at Samuari, the hibachi place in Huntington.  We had a nice dinner.  Cody went to his friend's house for a little while tonight.  I will wait up for him.  I am trying to get laundry done so I can pack for the week tomorrow.
Good day and hoping for a good night...

August 2, 2013

For some reason we both woke up too early today.  We seem to be on the same page a lot.
We did not do all that much today.  Cody's friend was here and we did some crafts.  Only she could get Cody to participate.  Cody's cousin and uncle are coming tomorrow and not sure what the plan is.  No plans for Sunday so we will find something to do.  We enjoyed left over bbq dinner tonight and Cody really loved it.  Thanks, Allison!!  And we got a delivery from the Dalia's too.  We are so blessed with so many good friends.  Other than my neighbors, most of all of my friends came from my connections at work.  Truly blessed.  I am still amazed by the mail we get and all the support, donations and good thoughts and prayers.  Thank you to all of you!
We are due to check in Monday and we are not sure we will get a room at Ronald House but they will put us in a hotel if not.  I think it is full there because of the renovations and such.  Chemo starts again and we pray for the best.

August 1, 2013

Wow, where did July go?
Nice quiet day here which was welcomed.  We had some visitors (thanks Roseanne and Dana!) and it was nice.  Got my dryer fixed but now have a leak in the kitchen.  Always something.  Cody and I had a little talk and I think he feels pretty good physically, especially since he can eat out again.  The fish store guy came today and did a design for his salt water tank which made him happy.  He needed a little pick me up.  He does not need to keep dipping his hands in the fish tank to re arrange the rocks.  It looks pretty impressive.  We had dinner with other friends tonight, (it was fun Jean and Mike!) and I even got a few minutes to myself to go for a manicure and pedicure.  That was relaxing and much needed.  I felt like it was a productive day too.  I know Cody talked to his psychiatrist and I have my appt all set up for next week for my new one at the Counseling Center that Sloan has.  They have everything.
Thank you all for reading and for the support...all of the support. We are lucky!