April 12, 2012

SO things are good! This past week (we are off from school) Cody had a physical at a regular dr out here. We need to get a regular dr for him so that he can get medical attention when he needs it for things like strep, etc. We no longer need to rush to Sloan. It is a great feeling! Yesterday we spent the day with 4 drs in NYC at 4 locations in NYC. Very long and exhausting day. Cody saw the doctor, still a MSKCC dr, that will follow him yearly for long term issues. It was good to know we had graduated in a sense. He had some concerns and spoke to the dr about them. We will see this dr in a year. Then we went to an endocrinologist. This is basically a dr that deals with hormones and also things like calcium and bone loss. Cody has some bone loss but hopefully this can regrow. Amazing right? He will watch Cody for any changes or imbalances on any levels. Then we went back to our bone marrow transplant team and we are working toward taking out the feeding tube!! Cody is attached to it in more ways than one. He is kinda dependent on it so we are working toward decreasing the feeds. He smiled even though I know he is very nervous. He can do it. Then we went to the kidney specialist to check for that level of protein in his urine. All is hopefully good there too!

Cody spent Easter in Canada, well sorta. Not much of an Easter celebration so he came home to a basket from me! I miss him when he is not here.

Speaking of missing, Casey is away now and we did get to Skype with him which always makes me smile! He got a promotion so he is feeling pretty good too. I pray for his continued safety and is speedy return to his home!

April 3, 2012

Wow...time sure flies! I am proud to report that even though Cody got strep, we have not had to so to MSKCC the entire month of March. Big improvement!

Busy here with Cody's 5 classes and projects. He is doing ok but needs a lot of help! It is tough on both of us.

We are finally doing a few home improvements which is always fun.

We go to MSKCC on the 11th. I am really hoping they can convince Cody to take his feeding tube out. He is getting one can of insure and a little water. He is definitely eating more and pretty normally. He is kinda attached to it, no pun intended and worries.

Cody is still dealing with anxiety which causes him to get upset and vomit at times. I really think it is anxiety related. This too, shall pass.

Cody is heading to Canada for this weekend of Easter. I really miss him when he is gone.

I know he is moving ahead...today he went with 'friends' from Dowling and got breakfast. I was so happy!!! Big step again.

We got to see Cody's player last week after the Islanders played the Penguins. He is a Penguin now. It was so good to see him and Cody still gets star struck and forgets how to talk. It is so cute!!

Happy Passover and Happy Easter to all my friends that read this. And to my teacher peeps, enjoy the vacation!!

PS. Keep Casey in your prayers...