Thursday, February 27, 2014
February 27, 2014
Quiet week, just what we like..bloodwork was fine but doing it again tomorrow. The kidney dr says there is still protein in the urine so he wants Cody back on the meds. Hopefully the drs will talk and get it all worked out. The plan is to get to Sloan on Monday for scans and then chemo on Tuesday. We will see what his numbers are for tomorrow. Keeping my fingers crossed. The delays worry both of us. Have a good night all….
Monday, February 24, 2014
February 24, 2014
Monday-Good weekend! We ran a lot of errands and had dinner with friends on Saturday. Cody raced his car on Sunday and had a good time. I missed seeing Casey online. He is busy and only gets a little free time here and there.
Cody went to a local lab to get bloodwork today. The Sloan in Commack did not have appts. It probably takes 3 minutes to draw blood. Not sure what that was about but he got it done. We will hear results tomorrow and hopefully he will not need anything.
Hoping for a quiet week...
Cody went to a local lab to get bloodwork today. The Sloan in Commack did not have appts. It probably takes 3 minutes to draw blood. Not sure what that was about but he got it done. We will hear results tomorrow and hopefully he will not need anything.
Hoping for a quiet week...
Friday, February 21, 2014
Friday, Feb. 21, 2014
Boy, the week went by so fast! We got a few things done and will do a little more tomorrow.
Today we were at Sloan all day. Cody ended up needed a blood and platelet transfusion. We were there most of the day. Cody was not happy that USA lost the hockey game..to Canada. Guess where his nurse was from?? Canada…and she had on a Canada shirt. It was quite comical. Everyone kept coming in to check out the score. He is so popular there. He got a foot rub today from the masseuse there. And his Caitlin came to hang out. I know he likes her. He asked her to come eat with us but it was kinda last minute and she couldn't go. : (
Hope everyone had a good Friday. Enjoy the weekend...
Today we were at Sloan all day. Cody ended up needed a blood and platelet transfusion. We were there most of the day. Cody was not happy that USA lost the hockey game..to Canada. Guess where his nurse was from?? Canada…and she had on a Canada shirt. It was quite comical. Everyone kept coming in to check out the score. He is so popular there. He got a foot rub today from the masseuse there. And his Caitlin came to hang out. I know he likes her. He asked her to come eat with us but it was kinda last minute and she couldn't go. : (
Hope everyone had a good Friday. Enjoy the weekend...
Tuesday, February 18, 2014
Tuesday, Feb 18, 2014
So thank goodness the snow held out or rather disappeared. We headed in around 11 and the roads were clear. Cody did his bloodwork and we waited for the drs. His counts were good, he did not need any transfusions, no platelets or blood. He looked good! He was not neutropenic yet so we could get lunch out. We had to drop off his urine at the kidney specialist. They are still monitoring the protein there. His scans are scheduled for March 3rd and chemo will begin March 4.
After lunch we met with radiation team. All looked good until we talked about the long term plan. There is a chance that he will need radiation to the lungs. They just want to make sure they got everything. We discussed the possibility of 'dead' tumor. Cody would like it out eventually. We will discuss more when all is finished. I was not prepared for the radiation news but will keep praying that the chemo is working and the scans have improved.
Thank you all for thinking of us. We feel the love.
PS. My mom will be back in the nursing home in a day or two. She recovered as well as can be expected and we will just have to wait and see how much her body can handle. Thank you.
After lunch we met with radiation team. All looked good until we talked about the long term plan. There is a chance that he will need radiation to the lungs. They just want to make sure they got everything. We discussed the possibility of 'dead' tumor. Cody would like it out eventually. We will discuss more when all is finished. I was not prepared for the radiation news but will keep praying that the chemo is working and the scans have improved.
Thank you all for thinking of us. We feel the love.
PS. My mom will be back in the nursing home in a day or two. She recovered as well as can be expected and we will just have to wait and see how much her body can handle. Thank you.
Saturday, February 15, 2014
Feb. 15, 2014
Saturday-Loved being home today with my boy. Just wish they were both here! I did get to talk to Casey yesterday so that made me happy.
We got home last evening around 7 and just relaxed and unpacked. Cody looks good and feels good other than being tired. I am so glad I have the week off to be here with him. We go back Tuesday for bloodwork and we will drop off a urine sample to his kidney specialist. He is still have protein in his urine so we need to figure out a plan. The medication to treat this is actually a blood pressure med, to lower pressure and we do not need that! Guess the drs need to chat.
Mom recovered as much as she can from this last heart attack. Her mental state is better and she is losing the fluid. This will keep happening and just not sure how long her body can endure all the trauma.
Hope all my teacher peeps enjoy the week off! Phew we need it!! And think-NO MORE SNOW!
We got home last evening around 7 and just relaxed and unpacked. Cody looks good and feels good other than being tired. I am so glad I have the week off to be here with him. We go back Tuesday for bloodwork and we will drop off a urine sample to his kidney specialist. He is still have protein in his urine so we need to figure out a plan. The medication to treat this is actually a blood pressure med, to lower pressure and we do not need that! Guess the drs need to chat.
Mom recovered as much as she can from this last heart attack. Her mental state is better and she is losing the fluid. This will keep happening and just not sure how long her body can endure all the trauma.
Hope all my teacher peeps enjoy the week off! Phew we need it!! And think-NO MORE SNOW!
Friday, February 14, 2014
Feb. 14 2014
My day was set to be a good one but started out with a call about mom. She is back in ICU tonight with another heart attack. Prayers needed.
I was on my way to spend the afternoon with Cody and Casey called from overseas! That was very special and very sweet. I miss him and I know he is concerned about his brother and his grandma.
Cody did well this week but I know he is worried about the decrease as we all are. He wanted KFC for dinner so we had a nice Valentine dinner there…LOL
I am glad he is home and will say extra prayers for mom tonight. Hate to have her suffering and so uncomfortable.
I was on my way to spend the afternoon with Cody and Casey called from overseas! That was very special and very sweet. I miss him and I know he is concerned about his brother and his grandma.
Cody did well this week but I know he is worried about the decrease as we all are. He wanted KFC for dinner so we had a nice Valentine dinner there…LOL
I am glad he is home and will say extra prayers for mom tonight. Hate to have her suffering and so uncomfortable.
Thursday, February 13, 2014
Feb. 13, 2014
SO this is the 5 day chemo. I was on the wrong cycle. This is cycle 8 of 14 then we go to maintenance which can partially be done at home. I drove in yesterday with friend, Jean and her fiancé. It is always good to have company. We lucked out. We had a nice dinner then once we went to go hang at the Ronald house, Cody was offered 4 tix to the Knicks game. So off we went. It was fun and a nice experience. Jean and I were hoping for this snow day so we could rest, as we got home around midnight. It was all worth it! Cody is doing well and loves the company. They love him at Sloan and that makes me comfortable when I cannot be there. I hate not being there. Hopefully all gets cleared up tomorrow so I can travel safely to get him.
I was corresponding with our great friends at Contractors for Kids this morning. Debbie and all of the people there are amazing. I am always so touched by the kind words they share. We are invited to their huge event next month and depending where Cody is in treatment depends on it we can go. I have to post it here. This is what make CFK so special. I don't think Debbie will mind…here is what she wrote me: I consider myself so blessed because of the many special people in my life. You both are part of that. We surround ourselves with good people because collectively we all help each other in our own ways. Whether it be strength, inspiration, a smile, a needed hug, words of encouragement....those things are all so important and make us the people we are so we can do the same for others. You and Cody have done that for me and allowed me to pay it forward to others- the hope, inspiration, strength and the feeling of love. I am a better person because of how you have touched my life. Thank you and keep the faith that Cody will pull through again, no matter how difficult, he is so strong and will pull through. CFK will always be there for you but so will I! Take care, stay safe and warm today and we will speak again next week. Love you xoxo
I was corresponding with our great friends at Contractors for Kids this morning. Debbie and all of the people there are amazing. I am always so touched by the kind words they share. We are invited to their huge event next month and depending where Cody is in treatment depends on it we can go. I have to post it here. This is what make CFK so special. I don't think Debbie will mind…here is what she wrote me: I consider myself so blessed because of the many special people in my life. You both are part of that. We surround ourselves with good people because collectively we all help each other in our own ways. Whether it be strength, inspiration, a smile, a needed hug, words of encouragement....those things are all so important and make us the people we are so we can do the same for others. You and Cody have done that for me and allowed me to pay it forward to others- the hope, inspiration, strength and the feeling of love. I am a better person because of how you have touched my life. Thank you and keep the faith that Cody will pull through again, no matter how difficult, he is so strong and will pull through. CFK will always be there for you but so will I! Take care, stay safe and warm today and we will speak again next week. Love you xoxo
Monday, February 10, 2014
Feb. 10, 2014
Monday-Today Cody began another round of chemo. I think this is the 8th cycle but not sure. He is back on the 2 day dose and then hydration and meds the rest of the week. I hate not being there. I miss him already. I will go on Wednesday.
Tomorrow my friends will be there at MSKCC. Our sweet friend Meg will get another knee as a result of cancer. She will do fine but extra prayers will be appreciated.
We had a nice weekend and Cody got to go snowboarding! A former student and friend, Tyler McGowan went with us. It was a good time. Then Saturday night we had another treat. We used our Christmas present and enjoyed dessert at the Melting Pot….YUM!! Sunday Cody raced his car at the track and he enjoyed that too. I know he stresses before chemo week so it was nice that he kept busy and his mind off this week.
I am praying for a smooth week for him and best wishes to Meg tomorrow.
PS. My mom is settled into a nursing home. She is a fighter too. She is gaining weight and settling in.
Thank you.
Tomorrow my friends will be there at MSKCC. Our sweet friend Meg will get another knee as a result of cancer. She will do fine but extra prayers will be appreciated.
We had a nice weekend and Cody got to go snowboarding! A former student and friend, Tyler McGowan went with us. It was a good time. Then Saturday night we had another treat. We used our Christmas present and enjoyed dessert at the Melting Pot….YUM!! Sunday Cody raced his car at the track and he enjoyed that too. I know he stresses before chemo week so it was nice that he kept busy and his mind off this week.
I am praying for a smooth week for him and best wishes to Meg tomorrow.
PS. My mom is settled into a nursing home. She is a fighter too. She is gaining weight and settling in.
Thank you.
Wednesday, February 5, 2014
Feb. 5, 2014
Wednesday…snow day!
Easy week for me but shoveling this heavy snow is hard work. Thank goodness for my GREAT neighbors that help out each and every time! We are lucky!!
Cody is feeling pretty good. I know deep down he is worried because he drops questions and thoughts every so often. I will keep encouraging him. He goes on Friday for a blood check.
Mom is ok..it is day to day. Thank goodness my brother is there. He is doing a great job!
Thanks for checking in on us!
Easy week for me but shoveling this heavy snow is hard work. Thank goodness for my GREAT neighbors that help out each and every time! We are lucky!!
Cody is feeling pretty good. I know deep down he is worried because he drops questions and thoughts every so often. I will keep encouraging him. He goes on Friday for a blood check.
Mom is ok..it is day to day. Thank goodness my brother is there. He is doing a great job!
Thanks for checking in on us!
Monday, February 3, 2014
Monday, Feb. 3, 2014
Cody did well all week. His counts are slowing recovering. Chemo was planned for today. Cody is upset and worried and they want it to be less again so that makes him scared, I know. I will continue to offer support to him as I always do.
I ended up flying to Florida Friday night. My mom was rushed back to the ICU. She was delirious and filling up with fluids. Her sisters were there with my brother and sister in law. They were able to get some fluid out but as her nurse said she is "losing the battle".
I saw her and spent some time with her and we talked with her to make sure she knows what is going on to the best of her ability. We found the nursing home and she is supposed to be going there as I am writing. She is deteriorating today. My brother said she looks tired and the fluid is building up again. It was hard saying goodbye and seeing her suffering. My brother is doing a great job and is by her side and doing everything she says. My sister in law is a huge help too. I pray she goes peacefully and that she does not have to suffer anymore. She is so uncomfortable.
I will update again tomorrow...
I ended up flying to Florida Friday night. My mom was rushed back to the ICU. She was delirious and filling up with fluids. Her sisters were there with my brother and sister in law. They were able to get some fluid out but as her nurse said she is "losing the battle".
I saw her and spent some time with her and we talked with her to make sure she knows what is going on to the best of her ability. We found the nursing home and she is supposed to be going there as I am writing. She is deteriorating today. My brother said she looks tired and the fluid is building up again. It was hard saying goodbye and seeing her suffering. My brother is doing a great job and is by her side and doing everything she says. My sister in law is a huge help too. I pray she goes peacefully and that she does not have to suffer anymore. She is so uncomfortable.
I will update again tomorrow...
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