February 27, 2011

Sunday-Quiet day and a nice end to the winter break. I wish I was somewhere warm but then it would have been hard to come home. I have been doing a few things here and Cody is just relaxing. He needed the week off for sure. He spent yesterday with his Uncle Jim. He came out to work on his car. Cody actually helped him put new brakes on and we went to lunch. Today we just ran around and are ready to go back to school/work. We are waiting to hear from Casey. We talked to him today and we know he is leaving to go overseas within the week or next week. His friend Preston is already there and we are putting together a box to send over. It is so hard to get a grip on this but I know both of them will do the right thing and will come home safely. Keep them in your prayers.

February 24, 2011

Thursday-Today was a long day but a good one. We took a ride to see Matisse. Cody wanted to spend some time with him and not be rushed. Matisse's other grandparents were there but Cody got to play with him. I went to donate blood with Jim, Matisse's dad. Then Jim, Cody and I went to have lunch. Cody actually ate lunch which was impressive. He saw some of the drs and team there that he has not seen in a while and everyone was so glad to see him and commented on how well he looked. He snoozed in the car for a little one. He really feels close to Matisse. We took a walk around the mall. Cody has decided he wants a new IPOD since he gave Casey his ITouch to take overseas with him. We shall see.

Quiet night here at home and watching American Idol with Cody.

February 23, 2010

Wednesday-Everyone left and Cody and I are chilling. We got up at 4am to say goodbye to Casey and Nicole. It was hard to say goodbye. I know he will be safe. I will be counting the days till he is back on US soil. Today I spent the day cleaning up and then Cody and I went to the gym. He is deciding whether or not he wants to join. It is really a tough workout for him but he does it. It is fun for me to have him there. We have a good time together. Tomorrow we are going to the city to visit Matisse. His first biopsy was not too promising but he has time. Another week and they will check him again. Cody wants to just hang and play with him. Heading there for tomorrow.

Hope the week is good for everyone.

February 21, 2010

Monday-Hockey game was awesome!! Not only did they win but we had the perfect veteran salute for Casey and Roy was picked to do a trivia game. It was so fun. The kids had a good time. We have been busy with everyone and it has been fun. Cody's uncle and cousin came from PA and then all of us so we had a huge crowd.

Cody has been able to keep up and hang with everyone. He is tired at night but is doing well.

Good times....

February 17-19, 2011

Fun few days...my brother and family got in and been busy ever since. My nephews will not leave Cody alone. So cute. Saturday we all went into the city and stopped in to see Matisse and then to the Museum of Natural History. Everyone had a good time although it was a little too cold and windy. Cody did well and walked a lot. He is passed out now and I am sure he will need to sleep a loooong time in the morning. Casey and Nicole are with us tonight and are off to a late movie. Not sure what the plan is for tomorrow but looking forward to the hockey game on Monday and for the Veteran salute to Casey. I know I am proud!

February 16, 2011

Wednesday-We got some great news today. Cody is allowed to dorm at Dowling in September. He is so excited!! I have to get the application for residence in. Very exciting. Not sure I am ready for this but I am not preparing myself.

We are excited about the family coming tomorrow.

Tonight we ended up selling the sugar glider to the guy that cuts my hair. It was a lot of work and we just did not have time for it. It needs a lot of attention. Cody was ok with the decision. Trying to keep him distracted. All good!

Have a great day!

February 15, 2011

Tuesday-Well today it was confirmed. Matisse has the same ALL that Cody has but with a B cell type while Cody's was T cell. His prognosis is good and he is getting the best treatment possible. He is at Sloan and using the hematology team there. He has all of our nurses and Cody and Casey went there today for Cody's appt and they saw Matisse too. Cody got a great report and some meds were decreased and even more were decreased tonight. So happy for him. It was good for Casey and Nicole to see this and to meet everyone. We went to dinner with Nicole's parents tonight and got a few laughs. It was a good day. Include Matisse in your prayers.

February 14, 2011

Happy Valentine's Day. Not much of a holiday for me but glad that Casey and Nicole enjoyed their evening. It was nice of them to come visit me at work. The kids were so excited and loved seeing 'an army guy'. He wears that uniform proudly. He looks great too.

Little Matisse, Cody's cousin has his biopsy today and his first round of 2 different chemos. He did well and also got his temporary line put in. He is a sweet one. My heart breaks to think of him going through this.

Hope everyone enjoyed their days...

February 13, 2011

Sunday-Today Cody popped out of bed at 8am. He was up and showered and ready to go see his cousin. We went to get a few presents. He also wanted to see another boy, Karl that he had met. We unfortunately saw another guy he knows, Ralph and he is not doing so well. Matter of fact, his leukemia spread to his spleen and now there is nothing left to do. He looked horrible. He is 23 and his family was there. His mom found me and she was a mess. I did not tell Cody. They are taking him home and it is just a matter of time. Awful.

Cody's cousin, Matisse is 3 and he was sleeping when we got there. He woke up and was feeling pretty good. He is going to have his bone marrow biopsy and spinal tomorrow. He is getting a central line in. I would imagine they will start chemo in a day or two. Just so sad and so unfair. I had to offer help today to get bloodwork for him. He was not a happy camper. I was sitting with him and he was complaining that the tape was hurting his hand. He asked for the dr. He said "get the dr and ask them to fix it." He is just 3. So cute. Just pray that he has an easy ride and that he responds to chemo.

Long emotional and exhausting day. We went to dinner with Casey and Nicole. Off to bed and saying a lot of extra prayers tonight...

February 12, 2011

Saturday-Well today was great and then not so great. Casey and Nicole and pups got here!! It was soooo great to see them. The pup is cute and so far so good. We are the ones watching Emma, the new pup.

The awful news is that Cody's Uncle Jim called me. He is the uncle that has been a huge support for Cody and I through this leukemia battle. Very sad news. His 3 year old son, Matisse was diagnosed with leukemia today. So strange. Very upsetting to say the least. Cody feels awful and somehow feels like he caused it. He keeps asking if it is contagious. Now Casey is asking about the hereditary issue. I quickly sent out emails to our team at Sloan. Dr. Kernan, Cody's main dr asked me to call her. I quickly did and she took down some info and also called Jim. Jim knows most of the drs too. She was going to go see him but worked on her part and got him admitted to Sloan. She is a great person. We are going there tomorrow and Cody is allowed to visit him. We feel terrible but we know he is in the right place. We are waiting to hear on the type as to what the course of attack will be. We are so lucky to have to staff at Sloan and they are very compassionate people. Cody has been emailing a boy he met and we actually saw him do the puck drop a few weeks ago at a hockey game. He is in our old room at Sloan and Cody wants to see him too. He knows we may not be able to but he wants to get him a present. Very sad and so unfortunate. Not fair...

February 7, 2011

Monday, Tuesday and Wednesday went by...but this is a slow week. It is good that I do not feel the need to write every day. Unfortunately Cody has to stay out of school the rest of the week. Someone in the school has 5th's disease and it can cause his red blood cells to shut down so very dangerous. The good news is he does not have to go to Sloan this week and he does not need the MRI as his knee is much better. I feel bad that he has to sit home all day but it is just for a short time. I don't think he would have ever imagined he would be upset about missing school. He is trying to stay caught up. He can do it but with my help.

Casey comes Saturday and we are excited about that. Then my brother comes next Thursday with my sister in law and my nephews. We are looking forward to it!!

February 6, 2011

Sunday-Superbowl Sunday- Steelers against Packers. Cody and I are here watching. I did the pool at work and we are both hoping for a win...

Good day today although we did not do much. Long week ahead and it ends with Casey and Nicole coming in...with a new puppy!! Good times....night all.

February 5, 2011

Saturday-Hockey game tonight. It was a good game too. I am a little concerned that Cody is not drinking enough. Might have to run some fluids tomorrow. He gets mad at me too but he has to learn to drink more for sure. I am tired tonight so off to bed...night all

February 4, 2011

Friday-Cody got himself on the bus this morning. He came to my school after his. We did a childhood cancer fundraiser. It was a nice event. He hung out in my class and enjoyed the kids. Quiet night here at home.

Febraury 3, 2011

Thursday-Long day for Cody. He went to school and had his tutor at home after school. He did well, just pretty tired. Thank God tomorrow is Friday...

February 2, 2011

Wednesday-Good day at Sloan. I had a delay so got a few things done today. They are tapering meds and Cody called to tell me he spoke to a boy that is going into transplant this week. He felt so proud.

Last night before bed I told him how upset today. It was an emotional day for me, not worried just emotional. He knew I cried once I got back to work. He was concerned and wanted to know who was with me. I told him Mary and Corinne were there. Then he said he needed to be honest. He said he cried the day I went back to work. So sweet. No one can understand this connection or all that he and I have gone through. So proud of my boy!!!

February 1, 2010

Tuesday-BACK TO SCHOOL FOR CODY! He was up and ready to go before I left. The bus came at 10:30 and I was able to make it home in time to see him get on. He would not let me take a pic but he was pretty excited. I ended up balling my eyes out. He did not see it but I told him this evening. It is hard. I am very happy and proud and was not crying because I was worried. Hard to explain but it was a milestone and after two years, it was an emotional one. He will get to finish his senior year and be with his friends!! That I am very happy for! We were talking tonight and he said it was a weird feeling and he just kept thinking....finally! I cannot imagine what he was thinking on the bus ride. His friend Matt brings him home so that is good for him too. Tomorrow is a long day at Sloan and he is going with his dad. Things are definitely looking up!!

January 31, 2011

Monday-Quiet day but an exciting one. Found out that Cody passed his Global regents!! VERY good news! He is set to graduate in June! Soo very proud of him.

So today Cody got a sugar glider for a pet. Drs said it was a go. The thing needs lots of bonding time and it will give him something to take care of and something to do when he is home. He has wanted one for a long time and the company was at the mall this weekend. It was more than I wanted to pay for a pet but with all the good news and pressure from friends, how could I resist?

All in all, a great way to end the month.