March 29, 2011

Wow, it has been 9 days since my last blog. Cody had an appt last week at the kidney specialist. All is good, urine is free of protein so his body is really working hard. All good. We stopped in to see his cousin as he was being admitted with a fever. It is good to be there and to see everyone. Cody is gaining weight and feels great other than an occasional bout of nausea. We booked our tix for FL!! We go 4/19. So happy about that. Cody can swim in my dad's pool but not in a public pool and not in the beach because of the feeding tube. Def looking forward to some warm weather. We are winding down the hockey season and will go to see the players this weekend. I love surprising Cody at the game. The look on his face is priceless when I tell him.

All in all, things are good.

We heard from Casey the other night. It was a short call and he sounds good. His lips are chapped, poor baby and he asked for chapstick. I sent one box over and my school did a great job of donating some goodies. I will send another box over this weekend. I am waiting for another call and hope he continues to be safe and do his job and get out of there.

March 20, 2011

Well, I did not book the tix for FL, well, I did but booked them wrong so got a refund, thank goodness. Just waiting till Tuesday and hoping the prices go down again. The rest of the week was quiet. I went to a fundraiser for a friend that passed away this summer. My friends came and it was a fun night out. Cody did well and did all his pills and hooked up his feeds. We did not have any hockey games to go to this weekend so we relaxed. I was not feeling too great on Saturday night so taking it easy. Hoping it just passes and does not actually develop into anything. Busy week ahead. On Wednesday, Cody has to go back to the kidney specialist so I am taking a half day to take him. It is right near his uncle's so I guess we will stop in to see his little cousin who is doing well. He is responding well to his chemo, thank goodness.

Hope the weekend was a good one for all...good night.

March 16, 2011

Wednesday-Good day...just booked tix to FL for Easter break. It has been over 2 years since we have been down. So excited just to get away for a few days. Cody is nervous about it but will do fine. I know he will. It will be our first step in getting away.

He had a good visit yesterday. He gained weight and the dr noticed that he is working out too. He was proud of that. He is still feeling nauseous but I really think it is more anxiety related. He was not nauseous all weekend and then it hit him Monday morning. We tweaked a few meds and he was much better today. He is doing well. I am happy. He may not need to go back till April 5th is the weight stays up. Nice job Cody.

We have been seeing and chatting with Casey on FB from time to time. He sounds good. I got a lot of donations from some of the teachers so I am sending a box out real soon. I hope to have a few boxes to send. He will be happy to get those handwarmers.

Looking forward to tomorrow, St. Patrick's day and going to a fundraiser and going with some great friends. I have not been out in so long with these guys so it will be a blast, I just know it. Getting up for work on Friday will not be so great but I will do it.

Have a good night everyone!

March 13, 2011

Sunday-it was a quiet weekend for a change. We had tons of running around to do and did not get to the yard work..oh well.

We went to the hockey game on Friday and after Cody's tough week, I asked our girl if we could come down and just say hi. Cody did not know until we were in and watching the game. He was so cute, saying he got butterflies. We saw Josh, his player for a few minutes and had a nice chat. Then the other fav player, Gillies was there and welcomed Cody like an old friend. Such a good guy and a good looking guy at that. Cody was thrilled and it made a rather crappy week, end well.

He made arrangements on Saturday to test drive a mini cooper. It was fun and I do hope I can work it out to get him one. It looks like he is not getting much help from his dad so as usual, I will do what I can do to make something happen. Today was more running around, haircut for him and just doing some cleaning out again.

We got a few emails from Casey and he is asking for goodies. We were hoping to get a call today but guess he ran out of time. Maybe tonight..... Looking forward to an uneventful week.

March 11, 2011

Thursday-Well, I now have a son overseas. Casey left last night. I spoke to Nicole today and she said she dropped him off last night. I thought I was ok but it was tough to hear it officially. I know Cody was upset too. We pray for his safe and fast return.

Cody is focusing on getting a car. He is obsessing over it to be honest but it will all work out.

Both of us are really tired tonight and looking forward to the weekend. Night all.

March 8, 2011

Tuesday-Long day at work but all is good otherwise. We decided against the hockey game, the week night ones are too tough. Cody joined my gym so he and I went and worked out. It was good. It really wipes him out but he loves it.

Cody's cousin is doing well and responding. His counts are coming up and he is home.

All in all, a good day but a long one.

March 6, 2011

Sunday-Crazy weekend, ups and downs. We had the hockey game yesterday and it was fun. We always have a good time there. The weather was nice so Cody was out helping his uncle work on his car again in the morning.

I had a dinner date and it was great. I enjoyed myself and all in great company! Stayed out till 12 which was a first for me, at least in the past 2 years.

Today was the down side. We did not go to the hockey game. Cody said he could not sit through the game knowing we were going to the wake afterwards. So we went early today and drove to Yonkers. Cody drove the whole way too. There was a line to get in to see Ralph and I tried to prepare Cody but as soon as we turned to get into the room, there he was. His brothers were up there and they were so upset, understandably so. Ralph's mom was so glad to see us and a cousin came up to see Cody. We walked closer and one of Ralph's brothers took Cody in his arms and was giving him this huge pep talk. It broke my heart. Cody stood there and did not say a word just stared at Ralph. It was the first time he saw a body. Ralph's dad saw Cody and lost it too. It was really hard. We did not stay long, it was crowded and uncomfortable for Cody. It was raining when we left and the walk back to the car was kinda nice. It was a quiet ride home but we are glad we went. My prayers go out to his family. I do not know how you go on without someone missing. Cody always checked for Ralph when we went to the hospital. He will missed and the peace is knowing that he is not suffering anymore.

Say a prayer for Casey. I am pretty sure he is leaving tomorrow to head overseas. I miss him already and pray for his safe return.

March 4, 2011

Friday-Well, Cody surprised me and went to school after his ordeal yesterday. He felt fine. We got good and bad news. The good news is that his cousin, Matisse is coming home tonight. His counts are up and he is doing well and strong enough to go home. We continue to pray for Matisse and hope he continues his strong path. The bad new is that a family we became friends with, especially Cody and the young man, passed away. Ralph was 23 and endured 3 transplants from his brother and his leukemia came back and reached his spleen and his spinal column. He was a fighter and had 15 months in remission. I feel so bad and it was heartbreaking to tell Cody. He went in to see Ralph on Tuesday which I really did not want him to do but I was not there. Cody wants to go to the wake and we will do that this Sunday. We have a hockey game on Saturday and on Sunday, both during the day so it will keep him busy and occupied. It is really sad when this happens. We are too close to the disease not to be affected and not to be afraid. I cannot imagine what goes through Cody's mind. I pray for the Califano family.

March 3, 2011

Thursday-Well, yesterday was good until the evening rolled around. Cody was complaining that his g tube was hurting. I looked at it and was oozing and red. I started emailing the dr and she said to start him on another antibiotic and plan to bring him in tomorrow. Well, this created a lot of anxiety last night. I knew that the tube would need to be changed and Cody was freaking. It does not appear to hurt but it is very uncomfortable and makes you feel squirmish. He insisted on stopping his feeds at midnight so he could be put out today to do it. I did not do that as he could not be without any food or fluids for over 12 hours with any IV going. The plan was set for him to go in after school today since he did not want to miss it. So his dad picked him up and took him in today around 1:30. Well, from what I heard our favorite NP talked him into some valium and tried to change it. It came out but the new one would not go in. It was sore already so this only made it worse. Once it is out, it can start closing up right away. So he was whisked away to the procedure room and got anesthesia to put a new one in and thank God it was all successful and working. Long and emotional day and I was thinking I should have been there. I was pretty stressed from last night so maybe it was better I was not there. The bottom line is he got through it and we will make sure it gets changed when it needs to. He got a stress dose of steroids tonight and I will do it all again tomorrow and he should be fine. He is having dinner with his dad and I am looking forward to the end of a long week. TGIF!! We have a busy weekend with 2 hockey games and I actually get to get out on Saturday night...whoo hoo!

March 1, 2011

Tuesday-Wow, March already!! Crazy.

Cody was up nice and early and took the drive into the city for his long day with his dad. He did well and the one thing that I asked was that he not go see his friend, Ralph. Well, he saw Ralph's mom and he went to go see him. Ralph is the 23 year old that received 3 transplants from his brother and he is dying. Very sad and upsetting. Cody said he looked bad and he was upset tonight. On a good note, he got a great report at the dr. He is making his own antibodies and if he keeps it up, he will not need the IVIG (blood plasma product) anymore. He might be able to start getting his immunizations in 6 weeks if he keeps up the good work. He looks great and feels good although he is worried about what he saw today. His cousin Matisse is still there so he visited him too. We are waiting to hear how his biopsy went from yesterday.

All is good here, just tired. Say an extra prayer for Ralph. I pray that his family gets through this and that he is no longer suffering or in pain.

Night all.