July 12, 2012

We had our visit to Sloan today.  Cody was anxious about it last night but today was prefect.  He did all of his tests, pulmonary, echo and EKG and then it was off to see the neuro team.  This is when I get nervous and our concern is his droopy eyelids.  He has always had the left one drooping but now the right one is and especially when he is tired.  The neurologist wants him to go to a neuro opthamologist to rule out a few things.  Then we can proceed from there.  Nothing seems serious, just concerning.  SO good news, more immunizations, his weight is up and it was good to see some of the doctors and nurses that we have not seen in a long while.  The head of the team was so happy to see Cody.  Everyone hugs him too which brings me to tears, happy tears though.  It brings it all back when you hear the head of the team say 'you really scared us kid'.  I will never forget what we went through but it is scary when you hear from the professionals how sick he really was.  It was a long day but a good one.
We stopped off on the patient side of M9 to see Meghan and her mom.  Meghan is the niece of my friend, Moira who takes care of our dogs when we could not, when Cody was inpatient.  Unfortunately her sweet 21 year old niece has a very rare bone cancer and just had her knee and thigh bone replaced last week.  Prayers go out to them as they await pathology results tomorrow and hope that the cancer was contained to what they removed. She has some of our old nurses and we got to see Nurse Liz today!  Meghan has her!!
It is an uneasy feeling to be back and causes me to reflect on all this. It is so sad and unfortunate and unfair when you see a child with cancer.  While we were talking in the hall, the stretcher comes out of a patient's room with the mom lying on it, with her child glued to her body and they wheel them down for some procedure.  VERY sad and hard to see.  No one should have to go through this.
I pray for  Cody tonight and that his great news continues.  I pray for Meghan tonight so that she may go home tomorrow and for all good reports.  For all others with this terrible disease, I pray.