Cody has been feeling very tired lately. He is not taking pain pills so I know his blister feels better and is healing. His appetite is not so great so I am worried about that. Trying to offer a milkshake every day but he is not wanting it.
We did not do much until today, Sunday. We ran a few errands and he was at the race track all day. I drove him there. The guys were all there and he was happy to see them. Cody pointed out the new car/kit that he wanted and has to start saving for. It was his plan for his Christmas present but he used his money to upgrade his fish tank. We have a long way to go for that. The owner of the track, Don, told him he needed to talk to him. He pulled him aside and told him about a bunch of guys that chipped in and now the car kit was his!! I knew about it and kept it a secret which is huge for me! Cody stood there speechless and kept saying 'are you sure?' Don said t was an early birthday present for Cody! What a great bunch of guys and also Don's ex wife who works there too. They paid for the car and it was a hefty price. He is one lucky young man! So in addition to racing, he sat there and started to build the car. I think he will hit the pillow and be out tonight. He will probably be sore too! He has a lot of work to do this week. He wants to try to have to car ready for the trophy race this weekend.
On Wednesday Cody will be the honored guest at the Islander/Ranger game. It is an outdoor game at Yankee Stadium so we will be freezing. He is very excited!
Tomorrow is blood work here in Commack and hoping for a quiet week. Chemo will resume next week on the 3rd.
Hope everyone enjoyed the weekend.
PS. My mom came home on Friday. Her sisters are there with her. There is not really anything they can do until she gets herself stronger so she can go through surgery. Tough times right now.
Sunday, January 26, 2014
Thursday, January 23, 2014
Jan. 23, 2014
Thursday-Cody went into Sloan today. He went with his dad so I worked. Cody ended up needing platelets. He is still losing weight and I know that is worrisome to all. I hate seeing him look this way. He is eating but not a lot. Just went to dinner and stopped to get him donut holes. He likes those and we all know how those put on pounds. Now I just have to make sure I do not feel compelled to eat them when he does! But I did get to the gym today! Finally!
No news on mom. She sounds a little better but they cannot do anything till she is more stable. I am keeping in close touch with my brother. He is doing a great job!
I love this short work week. Tomorrow is Friday-YAYY!!!
Wednesday, January 22, 2014
Jan. 22, 2014
Snow day and what a good day at home. Got some things done and watched "There's Something About Mary" with Cody. He did not remember seeing it. Went out about 5 to get meds and Mc Donald's for him. He had some pain today but I hoping he is getting better. He is heading in to MSKCC with his dad tomorrow for check up and blood work.
We both talked to my mom today. She was awake for a little while. She will have a procedure tomorrow to remove fluid from her lungs. It will be tested for cancer. Prayers needed. Trying to find out when the best time is to get down there. She is being taken care of now and will need help when she gets home. Roy is doing a great job!
I will update tomorrow…night all!
We both talked to my mom today. She was awake for a little while. She will have a procedure tomorrow to remove fluid from her lungs. It will be tested for cancer. Prayers needed. Trying to find out when the best time is to get down there. She is being taken care of now and will need help when she gets home. Roy is doing a great job!
I will update tomorrow…night all!
Tuesday, January 21, 2014
Jan. 21, 2014
Today just did not start out too well, for me anyway.
I got a call around 7 from my brother and he told me our mom was in the hospital and it was determined it was a heart attack. I was ready for work and planned to take the afternoon off to take care of Cody once he woke up. I just could not pull it together and did not go. I would be waiting by the phone all day and just not focusing on the kids in my class. He is there with mom and her sisters are there and a few cousins. My sister in law is heading there too. Prayers needed for mom. She has not lead a healthy life and it is catching up to her.
Cody did well today. He is still very sore and taking pain meds. He ate a good lunch and wants tacos tonight. He went outside to play with Xena in the snow. For those that do not know, she is our big dog and she loves the snow! We head back on Thursday for bloodwork and a check up. Hoping all stays well.
Thanks for all the help and the concerns and love…I am blessed that way.
I got a call around 7 from my brother and he told me our mom was in the hospital and it was determined it was a heart attack. I was ready for work and planned to take the afternoon off to take care of Cody once he woke up. I just could not pull it together and did not go. I would be waiting by the phone all day and just not focusing on the kids in my class. He is there with mom and her sisters are there and a few cousins. My sister in law is heading there too. Prayers needed for mom. She has not lead a healthy life and it is catching up to her.
Cody did well today. He is still very sore and taking pain meds. He ate a good lunch and wants tacos tonight. He went outside to play with Xena in the snow. For those that do not know, she is our big dog and she loves the snow! We head back on Thursday for bloodwork and a check up. Hoping all stays well.
Thanks for all the help and the concerns and love…I am blessed that way.
Monday, January 20, 2014
Jan. 20, 2014
Radiation is over. I really cannot believe it went by so fast now that it is over. I did not know how we would get through it and it is complete. Cody brought home the mold of his body as a 'souvenir' he says. It is not likely to be something I will ever forget.
We got discharged and got home around 7 tonight. Cody took a shower and took care of his blister and we are calling it a night soon. I am going to work tomorrow in hopes that we have a snow day on Wednesday which seems likely. He is feeling ok, just uncomfortable. I know the blister and skin is peeling. I hope this heals fast.
Snow coming here to NY tomorrow..starting to now like this. Come on spring!
Good night all!
We got discharged and got home around 7 tonight. Cody took a shower and took care of his blister and we are calling it a night soon. I am going to work tomorrow in hopes that we have a snow day on Wednesday which seems likely. He is feeling ok, just uncomfortable. I know the blister and skin is peeling. I hope this heals fast.
Snow coming here to NY tomorrow..starting to now like this. Come on spring!
Good night all!
Sunday, January 19, 2014
Sunday, Jan 19, 2014
Better day! Cody's counts are coming in. He is no longer neutropenic. That made him happy. These white counts will help with the healing of his bottom and the blister. He is getting around the clock pain meds so that is better. He had a softer bowel movement and it was not as painful. He ate a little lunch and then a little dinner and some snacks.
He even joked when the cleaning lady was here….she was mopping the floor and he says "mom, how could you make me use a toothbrush to clean the floor?" I was mortified. The lady started laughing. He is feeling a little better and high on pain meds. I had to admit it was a good one!
We did not see the wound care but the fellow just came to check him out. I am worried we are not treating the blister right but she said it actually looked good. We will see everyone tomorrow and hoping to go home maybe even tomorrow evening or Tuesday. (Just my predictions!)
Here's hoping for another quiet night….enjoy the day off tomorrow for those that have it!
He even joked when the cleaning lady was here….she was mopping the floor and he says "mom, how could you make me use a toothbrush to clean the floor?" I was mortified. The lady started laughing. He is feeling a little better and high on pain meds. I had to admit it was a good one!
We did not see the wound care but the fellow just came to check him out. I am worried we are not treating the blister right but she said it actually looked good. We will see everyone tomorrow and hoping to go home maybe even tomorrow evening or Tuesday. (Just my predictions!)
Here's hoping for another quiet night….enjoy the day off tomorrow for those that have it!
Saturday, January 18, 2014
Saturday night
Long tiring day. We both napped today and the pressures leveled out and the temps were good for the most part. He sipped a milkshake and ate some of Uncle Jim's chicken. I hate to see him so thin.
Moira came up to visit and I took a little walk with her and we got a bite to eat. Cody napped again and then we visited with Moira. Just after Moira and Jim left, Cody called out that he needed to go to the bathroom. Thank goodness they were not here. He was in so much pain but did have a bowel movement. This was a problem from radiation. He got IV pain meds right away and was able to calm down. I hate to see him cry. Then he got cleaned up and the blister popped. It is on his bottom and huge. It is unreal what radiation does. I knew it burned the skin but it just peels off. We will see wound care tomorrow to see how to keep it clean. Just pads under him now to catch the drainage. Hoping for a quiet night. Thanks for all the continued texts, calls and LOVE. We are so lucky that way. xoxoxox
Moira came up to visit and I took a little walk with her and we got a bite to eat. Cody napped again and then we visited with Moira. Just after Moira and Jim left, Cody called out that he needed to go to the bathroom. Thank goodness they were not here. He was in so much pain but did have a bowel movement. This was a problem from radiation. He got IV pain meds right away and was able to calm down. I hate to see him cry. Then he got cleaned up and the blister popped. It is on his bottom and huge. It is unreal what radiation does. I knew it burned the skin but it just peels off. We will see wound care tomorrow to see how to keep it clean. Just pads under him now to catch the drainage. Hoping for a quiet night. Thanks for all the continued texts, calls and LOVE. We are so lucky that way. xoxoxox
Saturday, Jan. 18, 2014
Friday was a long day. We got here and he needed platelets. We were here around 2. His hemoglobin was low but drs said he could wait for blood till Monday or Tuesday. We went down to radiation and were on the road at 5:15…just in time for rush hour traffic. We got home around 7 and stopped for steaks to cook at home. I made dinner, never changed out of my work clothes and Cody said he was cold. I knew it. He ate well. He went to sit in the TV room and took his temp, it was fine. He asked for a blanket and within 30 minutes he actually called me on his cell, too much pain in his radiation areas to walk, and said he was 100.3. We were told to come in if he reached 100.4. SO we packed up and were back here at 9:15. I think we were home an hour. Thank goodness no traffic.
We came to Urgent Care and the treatment we know all too well began, fluids, antibiotics, tylenol and pain meds, blood cultures and more tests, chest X-ray this time. They stopped using the mediport, just in case and he was poked too many times but they were able to get one IV in. I saw his tears this time. Then came the higher temps and lower blood pressures..the scarier lower blood pressures. The ICU drs come and said he needed to be transported. Luckily no one was here in Urgent Care so we had 2 nurses and one fellow to ourselves. I cuddled up with Cody on the bed and we did the best we could. They told me I could go take another bed but I just feel funny doing that. Finally, nurse Greg wheeled a bed in this room for me. We slept here and there between the constant blood pressure and temp checks. Not the best but I could put my head down.
Cody is sleeping now, it like night time in this room. His pressures are better and no temp as of now. Hoping we can avoid ICU as it would be across the street at NY Presbyterian again as there is no room here. With the better vitals, we are hopeful he can stay on the regular floor.
Cody talked a lot last night about cancer. He is becoming more and more worried about how he gets so sick and thinks it is from here. He actually has a tear in his rectum which is probably the source. Thank goodness we got here early before the infection had time to contaminate his entire body…..again. No culture results yet but we wait and continue the antibiotics. He's getting 2 different ones now.
Continue to pray for us..it works. Love you all!
We came to Urgent Care and the treatment we know all too well began, fluids, antibiotics, tylenol and pain meds, blood cultures and more tests, chest X-ray this time. They stopped using the mediport, just in case and he was poked too many times but they were able to get one IV in. I saw his tears this time. Then came the higher temps and lower blood pressures..the scarier lower blood pressures. The ICU drs come and said he needed to be transported. Luckily no one was here in Urgent Care so we had 2 nurses and one fellow to ourselves. I cuddled up with Cody on the bed and we did the best we could. They told me I could go take another bed but I just feel funny doing that. Finally, nurse Greg wheeled a bed in this room for me. We slept here and there between the constant blood pressure and temp checks. Not the best but I could put my head down.
Cody is sleeping now, it like night time in this room. His pressures are better and no temp as of now. Hoping we can avoid ICU as it would be across the street at NY Presbyterian again as there is no room here. With the better vitals, we are hopeful he can stay on the regular floor.
Cody talked a lot last night about cancer. He is becoming more and more worried about how he gets so sick and thinks it is from here. He actually has a tear in his rectum which is probably the source. Thank goodness we got here early before the infection had time to contaminate his entire body…..again. No culture results yet but we wait and continue the antibiotics. He's getting 2 different ones now.
Continue to pray for us..it works. Love you all!
Friday, January 17, 2014
Friday, Jan. 17, 2014
Thank goodness for pain meds. We are keeping them going and it takes the edge off. He is still very uncomfortable and I am guessing that will be for a while. We got to Sloan yesterday for radiation in no time. My neighbors and good friend, Craig and Sue were there being supportive for a friend as they always do. Cody and Craig were texting and Craig found us and sat with us during radiation. It is always good to have someone there. Cody was finished and we headed home. We decided to order a pizza (we can do that from a trusted place and if it is not cooked) and it was heaven! Cody ate almost 2 slices!
I am ready for worked and checked him and he had a slight fever but when I checked an hour later-nothing. Thank goodness. I will be home at 12 today and we will head in for blood work and radiation. Looking forward to a weekend at home! TGIF!
I am ready for worked and checked him and he had a slight fever but when I checked an hour later-nothing. Thank goodness. I will be home at 12 today and we will head in for blood work and radiation. Looking forward to a weekend at home! TGIF!
Thursday, January 16, 2014
Wednesday, January 15, 2014
Jan. 15, 2014
I feel bad for Cody. The radiation is causing so much pain and now constipation. He is very sore. It burns from the inside out. His front and back areas are affected. When I woke him up for his pills, he said he was calling his dr today. I came home on my break to check him. No fever but he was not feeling very comfortable. Once his dr called him back, he was told to come in. His dad was around today so he took him. He got some new meds, laxatives, flagyl and some creams for the radiation site. He has 3 more days of radiation but it will still be tender for a few weeks after that. Today I asked him why he was so mad at me and his reply was that he is mad at everything. I think he is so irritable because he cannot get comfortable. He is scared about his prognosis. He is worried about the chemo dose being less. He knows his body cannot handle the larger dose. I feel bad for him and I am scared too.
Thank goodness I work with such great people. I came in this morning and cried. My co workers were there as they ALWAYS are. I made it through the day. It is really difficult some times, a lot of times.
Tonight wishing my family were closer….missing Casey LOTS, wishing family lived closer. Love all of the phone calls and texts and emails. Again, thank goodness for my friends here. Love you all. Praying for a quiet night.
Thank goodness I work with such great people. I came in this morning and cried. My co workers were there as they ALWAYS are. I made it through the day. It is really difficult some times, a lot of times.
Tonight wishing my family were closer….missing Casey LOTS, wishing family lived closer. Love all of the phone calls and texts and emails. Again, thank goodness for my friends here. Love you all. Praying for a quiet night.
Jan. 14, 2014
Long day. I worked half day and got home to have lunch with Cody then we drove in. Well, he drove in and I sat white knuckled. I am just not a good passenger any more.
He got blood work done. He needed platelets and was border line for a blood transfusion. We were there so we both felt that we should just get it. That takes a few hours so he napped and I sat and then Uncle Jim visited. It was an emotional afternoon for me. I am tired and wish this did not happen. I was trying to see if Cody could actually sleep at Jim's tomorrow night. I am thinking Cody will not do this. He feels tired. He is crabby. He has pain and bad irritation at the tumor site from the radiation. He is uncomfortable and he took a pain pill last night. We finished up radiation (4 more days to go!) at a little after 7 and got here around 8:30 made dinner and I went to bed. I feel like I could sleep for 2 days and it still would not be enough. I am thankful for a 3 day weekend. Cody is hoping to attend the Islanders game on Monday with a friend. I am happy for him. It is a day game and then we will go to radiation after that.
Hoping for a quiet day today with no f……..!!!!
He got blood work done. He needed platelets and was border line for a blood transfusion. We were there so we both felt that we should just get it. That takes a few hours so he napped and I sat and then Uncle Jim visited. It was an emotional afternoon for me. I am tired and wish this did not happen. I was trying to see if Cody could actually sleep at Jim's tomorrow night. I am thinking Cody will not do this. He feels tired. He is crabby. He has pain and bad irritation at the tumor site from the radiation. He is uncomfortable and he took a pain pill last night. We finished up radiation (4 more days to go!) at a little after 7 and got here around 8:30 made dinner and I went to bed. I feel like I could sleep for 2 days and it still would not be enough. I am thankful for a 3 day weekend. Cody is hoping to attend the Islanders game on Monday with a friend. I am happy for him. It is a day game and then we will go to radiation after that.
Hoping for a quiet day today with no f……..!!!!
Monday, January 13, 2014
January 13, 2014
Monday morning-nice quiet weekend and praying the week goes that way too.
Cody just lounged around most of the weekend. We did get out to eat on Saturday night, thanks Jean, but hung around most of the day yesterday.
We have been working on the rooms, thanks to George Leace, (and thanks to Kim for 'loaning' her hub) for hanging the TV. We have more to do but looking good.
I got to Skype with Casey! Cody saw him for a minute because he was sleeping. He seems good, warm and safe. I will continue to pray for his safe return.
Well, the radiation is winding down. We have to go all this week and the last day is next Monday. Hoping this week flies by. It is a tough one on me, going to the city after work but it is easier to do when you know this is just about over. I did not know that radiation is cumulative so he could feel the effects for a few weeks after. At that point (probably in the upcoming weeks) we will do scans again. I continue to pray that all this is working. I know Cody is concerned with the 25% less dose (he is very smart in math) and figured out how much less he is getting. This is worrisome but his compromised body cannot handle it. It is best for now.
So we are eating home all week. I will come at lunch to check him and to make a quick lunch for him.
Hope everyone has a nice week! Keeping fingers crossed for an easy week for ALL of us!
Cody just lounged around most of the weekend. We did get out to eat on Saturday night, thanks Jean, but hung around most of the day yesterday.
We have been working on the rooms, thanks to George Leace, (and thanks to Kim for 'loaning' her hub) for hanging the TV. We have more to do but looking good.
I got to Skype with Casey! Cody saw him for a minute because he was sleeping. He seems good, warm and safe. I will continue to pray for his safe return.
Well, the radiation is winding down. We have to go all this week and the last day is next Monday. Hoping this week flies by. It is a tough one on me, going to the city after work but it is easier to do when you know this is just about over. I did not know that radiation is cumulative so he could feel the effects for a few weeks after. At that point (probably in the upcoming weeks) we will do scans again. I continue to pray that all this is working. I know Cody is concerned with the 25% less dose (he is very smart in math) and figured out how much less he is getting. This is worrisome but his compromised body cannot handle it. It is best for now.
So we are eating home all week. I will come at lunch to check him and to make a quick lunch for him.
Hope everyone has a nice week! Keeping fingers crossed for an easy week for ALL of us!
Friday, January 10, 2014
Thursday, January 9, 2014
Jan. 8,9, 2013
So Cody has been doing well this week. He looks good. He continues to be tired at the end of a long day, 8-6 pm and then daily dose of radiation is thrown in there.
He did enjoy the COLUMBUS hockey game (sure not to say the Ranger game) on Monday night. On Tuesday he went to the Knicks game and was so close again! The picture is attached. It sure helps pass the time. In case you did not know, the man in the picture with Cody is Spike Lee!!!
Last night I drove in with GREAT friend, Jean Szigethy. It is nice to have the company and I know Cody enjoys it too. Cody has bonded with her fiancé as he is setting up a salt water tank too. We went to the mexican place that Cody loves for dinner and just hung out at Ronald house for a little while. He carries that huge backpack of meds and hydration with him and it gets heavy and wears him out. But he is a trooper and never complains.
During radiation, Jean and I were there and watched the whole process. It is amazing how exact they have to be. Cody just lies there like a wounded baby bird and lets them make their precise adjustments. It breaks my heart and I cannot help to wonder what goes through his mind while he is there. The 12 inch thick steel door closes him in once he is in place and it takes just a few minutes. Usually they try to put on a favorite song for him. We watched the monitor from outside the room and could see the outline of the tumor. We do not know if it is shrinking yet but there will be scans coming up at some point. It was day 23 so he has 8 more days of it, not counting the weekends. I think he is about halfway through the chemo regiment too which looks like he will be finished this summer.
So I have decided with the new fish tank to switch rooms, the two down here, so that Cody can have a bigger room and have more of a hangout and nicer place for the new tank he bought. He is excited. He was cute in asking if it would be done Friday before he gets home!! I wish! Thanks to another GREAT friend, Bernadette, we were able to switch the bed and futon and did our best with Cody's drums-Bobby I said we did our best!
It was great to be with him and we had some laughs. He loves his nurses and we enjoy seeing the drs from the transplant team that we miss! Tomorrow is Friday and I will have him back home in no time. He will come him to some presents left over from Christmas. Thanks to the Short family for our goodies. We will use that Melting Pot gift card as soon as he can eat out again!! Love you guys!
Praying for an uneventful week next week too.
Thank you all for your thoughts and prayers. We are so blessed that way.
He did enjoy the COLUMBUS hockey game (sure not to say the Ranger game) on Monday night. On Tuesday he went to the Knicks game and was so close again! The picture is attached. It sure helps pass the time. In case you did not know, the man in the picture with Cody is Spike Lee!!!
Last night I drove in with GREAT friend, Jean Szigethy. It is nice to have the company and I know Cody enjoys it too. Cody has bonded with her fiancé as he is setting up a salt water tank too. We went to the mexican place that Cody loves for dinner and just hung out at Ronald house for a little while. He carries that huge backpack of meds and hydration with him and it gets heavy and wears him out. But he is a trooper and never complains.
During radiation, Jean and I were there and watched the whole process. It is amazing how exact they have to be. Cody just lies there like a wounded baby bird and lets them make their precise adjustments. It breaks my heart and I cannot help to wonder what goes through his mind while he is there. The 12 inch thick steel door closes him in once he is in place and it takes just a few minutes. Usually they try to put on a favorite song for him. We watched the monitor from outside the room and could see the outline of the tumor. We do not know if it is shrinking yet but there will be scans coming up at some point. It was day 23 so he has 8 more days of it, not counting the weekends. I think he is about halfway through the chemo regiment too which looks like he will be finished this summer.
So I have decided with the new fish tank to switch rooms, the two down here, so that Cody can have a bigger room and have more of a hangout and nicer place for the new tank he bought. He is excited. He was cute in asking if it would be done Friday before he gets home!! I wish! Thanks to another GREAT friend, Bernadette, we were able to switch the bed and futon and did our best with Cody's drums-Bobby I said we did our best!
It was great to be with him and we had some laughs. He loves his nurses and we enjoy seeing the drs from the transplant team that we miss! Tomorrow is Friday and I will have him back home in no time. He will come him to some presents left over from Christmas. Thanks to the Short family for our goodies. We will use that Melting Pot gift card as soon as he can eat out again!! Love you guys!
Thank you all for your thoughts and prayers. We are so blessed that way.
Monday, January 6, 2014
Jan. 6, 2104
So Cody got a ride in this morning, thanks Jean and Mike!! I am sorry it took so long!
So far the day went off without a hitch! I hate not being there. Did I say that before?
I was happy to be at work and to see all my GREAT and AMAZING friends there! But I miss my boy and I hate not being with him. We are doing the best we can!
Hoping for a fast week so he can be home!
So far the day went off without a hitch! I hate not being there. Did I say that before?
I was happy to be at work and to see all my GREAT and AMAZING friends there! But I miss my boy and I hate not being with him. We are doing the best we can!
Hoping for a fast week so he can be home!
Sunday, January 5, 2014
Jan. 4-5, 2013
Not much to report…and that is a good thing. Cody is doing well, no pain meds today. He got to take his long shower and that was awesome.
Yesterday we got out a little but today just chilling at home.
Cody will go in tomorrow to meet his dad. Thanks to Jean's fiancé, he will have a ride in. I hate that I am not there. I will be going to work tomorrow and it will be nice to see everyone. I will go in probably on Wednesday to have dinner with Cody and then on Friday to bring him home! Friday can't come soon enough. I hate these weeks…
Yesterday we got out a little but today just chilling at home.
Cody will go in tomorrow to meet his dad. Thanks to Jean's fiancé, he will have a ride in. I hate that I am not there. I will be going to work tomorrow and it will be nice to see everyone. I will go in probably on Wednesday to have dinner with Cody and then on Friday to bring him home! Friday can't come soon enough. I hate these weeks…
Friday, January 3, 2014
Jan. 2-3, 2014
So we got to NYC on Thursday about 11 and got Cody's bloodwork. His counts were really good for a change. Then we went to radiation. We finished up radiation and checked into the Ronald McDonald house. We had planned to go to a movie but we just wanted to chill. So we got settled in the room and Cody took a nap and before long, so did I. We met Uncle Jim and Matisse for dinner. We got some snacks and went back to watch the hockey game. We were both so tired and we had to get up at 5 am today. The storm had me (and my dad and stepmom) very worried. I was told there was no shuttle for the morning and the car services I called could not guarantee anything. So the alarm went off at 4:45 and I got the room ready and then we left at 5:30am.
So off we went to take the four block walk to MSKCC in the snow and wind. The roads were getting plowed so we just walked in the road. I had to stop for my inhaler but Cody keep going. Dragging the 2 suitcases was not fun but we did it. Once there we checked into surgery and he was on schedule for 7:30. All went well. There was a different surgeon and he did it a little differently but the mediport is in and the central line is out. Cody seemed more tired than normal this time so he was worried about being kicked out and where he could sleep until radiation at 1:00. They were so nice there. He got some pains meds and slept till around 11. He got up, got dressed and we went to get a snack. Then we visited his cousin on the 9th floor, he was getting blood work. Radiation was a little early then we got on the road. We got home around 3 I think it was. We had a snack and took a nap.
Just sitting here this evening and glad to be home. We are so thankful for all of our family and friends and all of the love we feel from all of you! Our dogs were taken care of…again..thanks Moira. Sue got our mail and Craig did our driveway. Thank you all!!
Stay warm, my NY family!! And be careful driving!!
So off we went to take the four block walk to MSKCC in the snow and wind. The roads were getting plowed so we just walked in the road. I had to stop for my inhaler but Cody keep going. Dragging the 2 suitcases was not fun but we did it. Once there we checked into surgery and he was on schedule for 7:30. All went well. There was a different surgeon and he did it a little differently but the mediport is in and the central line is out. Cody seemed more tired than normal this time so he was worried about being kicked out and where he could sleep until radiation at 1:00. They were so nice there. He got some pains meds and slept till around 11. He got up, got dressed and we went to get a snack. Then we visited his cousin on the 9th floor, he was getting blood work. Radiation was a little early then we got on the road. We got home around 3 I think it was. We had a snack and took a nap.
Just sitting here this evening and glad to be home. We are so thankful for all of our family and friends and all of the love we feel from all of you! Our dogs were taken care of…again..thanks Moira. Sue got our mail and Craig did our driveway. Thank you all!!
Stay warm, my NY family!! And be careful driving!!
Wednesday, January 1, 2014
Jan. 1, 2014
Happy New Year. We welcomed the new year at home and toasted with our water. We were up because we had to finish the last IV antibiotic for his infection. Earlier we went to visit my friend Jean and Mike and had some apps. We watched the hockey game and left when it was finished. It was a nice way to end the year.
We all reflect at this time. I have so many questions that I know will never get answered. Again, I try to follow Cody's lead. Just last night we were talking with Jean and her parents about Cody's illness and he interrupted and said 'why are we talking about this now?" I know everyone has questions too. I try to focus on the positive. We have met so many new amazing people. We are reminded each day of the wonderful people that surround us. We have seen the good in so many people and that continues each and every day. My heart is warmed each and every day.
I have a few family members and friends going through some tough times too and I pray for all of them. Again, I question all of this.
Tomorrow we are heading to the city and will stay tomorrow night. I am hoping the roads will be clear by Friday afternoon when we need to come home. Should be fun trying to get to Sloan but at least we can walk there. Brrr!
Hope 2014 brings us all happy and healthy days. We need this!
We all reflect at this time. I have so many questions that I know will never get answered. Again, I try to follow Cody's lead. Just last night we were talking with Jean and her parents about Cody's illness and he interrupted and said 'why are we talking about this now?" I know everyone has questions too. I try to focus on the positive. We have met so many new amazing people. We are reminded each day of the wonderful people that surround us. We have seen the good in so many people and that continues each and every day. My heart is warmed each and every day.
I have a few family members and friends going through some tough times too and I pray for all of them. Again, I question all of this.
Tomorrow we are heading to the city and will stay tomorrow night. I am hoping the roads will be clear by Friday afternoon when we need to come home. Should be fun trying to get to Sloan but at least we can walk there. Brrr!
Hope 2014 brings us all happy and healthy days. We need this!
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