Sunday, July 14, 2013

So we were off nice and early today.  Got to Sloan in no time and then the troubles began.   It was hard to get an IV in.  He needed it so he could get pain meds, morphine for the MRI.  It is painful for him to lie flat.  So after about 8 tries in each arm, we got a vein.  So the morphine is going in and his arm starts tingling, getting red, and then the hives come.  Now the morphine is already in.  So quickly we give him Benadryl and pull the IV out.  Now we lost out MRI appt.  He asks for something for anxiety so they give him his ativan.  So we wait until they can get us in and we give him Dilaudid, another pain med.  It makes him very loopy and he starts being rather silly.  So he finally goes into MRI and he is still too uncomfortable.  So the dr and nurse come down and he gets another dose.  He is resting and taking a snooze and they get the MRI or whatever scans they can.  He comes out and is so groggy.  We get food and walk to the block to see his cousins for 30 minutes.  Then as soon as we get in the car, he passes out.  He sleeps all the way home and then goes right to the couch.  We left his IV in his hand.  We get home and there is blood in the line.  I make the call and run to PM Pediatrics to get flushes because the ones here are all expired.  Fun.  We go to meet Roy at the train and had dinner.  He is watching a movie with his friend.
I am worried about what the scan will reveal.  I have so many questions.  I will keep praying...
Tomorrow we will leave here at 7 and get another MRI of the pelvis and femur bone.  Today was of the colon.  And then he will get the mediport for the chemo.  Again, I pray....