July 25, 2013

Long day but ended with both of my boys and my daughter in law all tucked in.  I love it!
Casey and Nicole missed their flight this morning but were still able to get to us around 1:00 at Sloan.  Cody was not feeling so great this morning.  He kept saying he needed blood.  We later found out he was dehydrated.  We talked with the drs about the plan for next week.  The biopsy did not show Ewing's sarcoma but the drs still feel it is.  It is non specific.  They are still trying to figure out what is the best plan of attack and have considered a 3rd option of putting a stint in the colon.  That way if the hole was created it could work as a barrier and not allow any leakage.  We should know more when we return on Monday.  It is a very dangerous situation right now and he needs to watched closely.  Today he got fluids and platelets.  He did not need blood.  We sat a lot but it was nice to have Casey and Nicole there.  One of Casey's friends came and we went upstairs to play a game while we were waiting.  Cody loved having everyone see Casey too.  We are all very concerned and very scared to say the least.  I see Cody losing weight and not looking so great.  His hair will probably begin to fall out.  We got home late today, tons of traffic and made dinner for Cody since he cannot eat out and we ordered Chinese food.  We played a short game and had fun looking through a time capsule that Casey had here. He made it in the 4th grade. Good laughs.  I love hearing my boys laugh!  The house is quiet and feels like old times.  I love that.  Tomorrow we are planning on a movie, depending on how Cody feels.  He came home with a backpack of fluids and we will de-access him tomorrow here at home.  Casey is an EMT so he has no problem doing it.  I will be in touch..thank you all for reading...xoxoxo