July 9, 2013

After a long wait this morning, we finally met part of the new team of drs that will be taking care of Cody's treatment.
Dr. Wexler, Cody's new primary doctor,  told us that the tumor grew in his groin first ( it was told to me the other way around and that is what I posted yesterday) and has metastasized or spread to his lungs, lymph nodes and some other bones. Chemo is starting next week and we need to do the best we can. He will get a temporary line or mediport on Monday or Tuesday.  This disease is not curable, like the leukemia was with the stem cell transplant.  It is treatable and with the hope from Dr. Wexler, he will get this.  The chemo is harsh, 2-5 day a week cycles of potent chemo.  After 9 weeks, we do the scans again and pray the tumor shrinks.  Radiation to the groin with most likely occur and/or surgery could be an option at that point to remove the tumor. Then the next phase begins.  It is a bit tricky since it has spread and also since his body already knows chemo.  This is an aggressive cancer. They usually do not see Ewing sarcoma as a secondary cancer which makes it trickier.  They are using standard chemo as his body won't be able to handle the more harsh one.  They want us to do some genetic testing as this mutation could be genetic.
Cody is doing ok.  I think it is starting to sink in.  He is worried about school and his new internship.  I will continue to reinforce that there is one thing important right now and that is getting better.  We have the next few weeks to figure this all out and to pray for everything needed to get him better.  He is most likely going to see his brother this weekend before it all starts.  He needs that and so does Casey.  I need some time to talk and be with friends and get some things organized.  We begin on Monday or Tuesday.
Please know that I am so very thankful for all of the support from all of you.  My phone never stops and my facebook page is full of prayers.  I am most grateful.  I know you are all praying and please continue that.  Every little bit helps.
XOXOX