July 31, 2013

So first the good news and then I will tell  you about the day we had.  So the tumor in the colon is a polyp and does not require surgery at this time...A little good news to make me cry with happiness.  He does not need surgery and chemo begins again on Monday.  Power in prayers!
So Cody was in some mood and insisted on riding the train alone.  I was beside myself.  I drove in and he rode the train.  I actually got there before he did.  We left home at 5:45 am.  He was scheduled for an MRI at 9 am at the other Sloan facility a few blocks away.  He was in the IV room getting a push of dilaudid, the pain med so he could lie flat for the MRI.  The nurse was pushing it in very slowly.  Cody felt it immediately and was getting silly.  Next thing we know, he says everything looks blotchy and he is out.  His head goes back and he nearly slides out of the chair.  VERY quickly the nurses come in and he is lifted to a wheelchair and they are checking pressure and giving his smelling salts and he is rushed to the back in the bed area.  His pressure is low and they start a bag of fluids to flush the dilaudid. He slowly wakes up and doesn't know what happened.  He is very groggy but comes around, thank goodness.  I cried all the way there today so my emotions were raw.  I lost it.  Thank goodness he did not see that.  So this makes us late for MRI.  Uncle Jim comes and helps me wheel him 2 blocks to the MRI place at the other location.
We get in and they tell us we are late and that they do not have room.  I called his drs back and within about 30 minutes, they find room.  He was not told that he had to drink 3 bottles of a barium mixture so they could see the colon better.  He finishes one and is very nauseous and shaky.  Around that time, the supervisor comes out and says to stop drinking.  We don't know why.  Then we get a team of drs there to tell us that he is not getting an MRI but a CT scan.  They were in touch with our drs and agreed that a CT scan would give a better picture of what they are looking for.  So we are waiting for the CT scan. Finally they fit us in and failed to tell us that he needed a rectal barium.  The solution would be an enema injected via a catheter into his rectum.  Of course he was not too happy about it but at that point we just wanted to get it over.  And we did.  He did well and we left and headed back to the main hospital.
We were there waiting for the PET scan.  We checked in and he was waiting to speak to his psychiatrist.  The team apologized for the mix up and Dr. Wexler came out.  He came right over and told Cody that the tumor was actually a polyp and that he would not need surgery.  We are leaving it alone for now.  We are to report Monday and start chemo again.
Now I have to work on his metal state over the weekend.  I am calling tomorrow to get set up with the counseling center for next week for myself.  Hopefully we can relax a few days and get through this.
I am ready for bed now....good night.