July 17, 2013

Cody had a pretty good night. We were up and at sloan at 7:30am. First ones there and last ones to leave.
So it looks like the procedure is to meet with the drs each morning nice and early and then we discuss the plan for the day. They actually cut back one of the chemo drugs.  I think they cut back because of the spot on his colon.  I am sorry if I am repeating myself.  Chemo will leave a hole in the colon and this would cause bacteria to back out which is not good.  Surgery would needed to remove that section of the large intestine. Cody gained 8 pounds from the fluids last night. It is expected but everything scares me.  They will be doing a colonoscopy this Friday. He will do the prep tomorrow.  Not going to be easy.  I sometimes wish they would leave him alone but I know he needs help.
My brother left today.  It was great having him. I know he will return.  Cody enjoyed his visit and he was a big help.
We played some games today and Cody felt pretty good.  His dad waited for us to leave and Cody decided he wanted to go to McDonald's by himself.  I begged him to not go and to let me or his dad go with him but he said he needed some time alone.  It is so hard.  He did it, of course and was fine but could not get into bed quick enough. He is trying to be so strong and to not change anything.  He is hooked up to a Iv bag of fluids in a backpack.  I know he is getting weaker and I don't want him to be alone in case something were to happen. It' s so hard.
I hope he gets that we need to stay here at Ronald house for each week of treatment.  It would be too much to drive back and forth after these long days here.  We get done at like 6 and have to be here at 7:30.  The other days we can do it,  We might even be able to get bloodowork done from home. He asked if he could stay here alone when I go back to work.  We all know the answer to that.
So with that, pray for a good night of sleep for both of us...and prayers for healing..