July 9, 2010

Well, I got 4 hours of sleep last night. Had to stop his feeds at midnight and then start IV so not rest for me. We were up at 5 and in the city by 7. He had the procedure and they looked around and were not happy with what they saw. There are a few more of these fistulas there and we are not sure what the source is, could be GVHD, Chrohn's disease or irritable bowel disease or something else. Now they want us to get to the GI specialist appt that I canceled this week which kinda made me upset. So we are going on Monday morning there. Not sure if anything will be done or what needs to be done but Sloan talked about the bowel rest with the bag, the colostomy. Hopefully that is not happening and if it needs to we can still get to GA. Cody slept most of the day and I got a nap in also. About to head up to bed now and hopefully have a good weekend, event free. Please say an extra prayer for a friend/teacher/former parent of a student. She is not well and her immediate future is not looking good. Thanks and good night.