July 6, 2010

Tuesday-We headed into the city around 1 today. Cody tried Chipolte but was happier with his sub. We had a quick ride in until we hit the bridge. We were then re-routed and it took us a while. Once there, Cody got set up in the IV waiting room and was just standing because they chairs were too hard for his butt and his back went. He cried and I had to hold him up even while he was sitting. I popped a valium in his mouth and we waited for it to work then got the bloodwork. We waited for a wheel chair and decided to take a desk chair on wheels to get him to the drs office. Once there, Dr. Kernan was upset to see him in so much pain. We talked about what to give him and came up with dilaudid. He was injected in his line and worked rather quickly. We are taking that home with us and we need to keep the pain under control. Then they attempted to use freezing spray on his bottom to check the fistula but that did not work. He cried out in pain, yet again. It was discussed that we cancel our specialist appt with GI and we will put him out on Friday and they will take a better look. We went to see the orthopedist and we discussed his compression fractures. He needs more Vit D so have to do some injections at some point. He has some nasal spray to start with so hopefully that will work well. We are decreasing the steroids and this too shall work. The idea of looking inside is to make sure there is no inflammation and we can cut down more on the meds.

It was agreed we could go on Wednesday to see Casey. Trying to work out details and I need a passenger. Any takers?