July 12, 2010

Monday-First I need everyone to say a prayer for the McGowan family. I had Tyler many years ago in kindergarten and his mom who became a good friend, passed away this evening. She battled cancer for 8 or so years and we passed and visited each other at Sloan a few times. That family is so strong but this is very sad. God has another special angel. We will miss you, Dina.

Last night was rough. Cody's back went again and I decided that if Casey does pass, we cannot do this flight. He cannot walk unassisted and it would just be too cramped for him. So on the way in today, I texted Nicole to tell her we were driving there for graduation and she said Casey did not pass. So upsetting and now he has to go thru the 'swamp' phase again in the heat of the summer in FL. Looks like it puts him back to late August graduation.

We went to NYU this morning and met with gastro. We saw all of our drs and nurses at NYU and it has been awhile. We miss them there. There is a plan for Cody and it starts with more bloodwork and stool studies. Then we will look internally again.

We head back to Sloan on Wednesday and will discuss more then. Dr. Small has been handling this and she is doing a great job and is very compassionate too. It helps.

Tomorrow is a rest day. Pray for the McGowan's