Day 208 December 29, 2009

Tuesday-Long day at Sloan today for antibiotic infusion and that IVIG infusion. We had a nice chat with Dr. Kernan about what we are looking forward to. Cody is gaining weight slowly but surely. The fever last week was from an infection in his g-tube that his IV line contacted. Have to keep those lines away from g tube.

Looks like we will not be on every other week visits for a few months. That makes it difficult for my job. I will begin the discussion process next week. We can possibly go to Winthrop for the blood work which should help. Not sure what I will do just yet.

We got home around 7:30 and were pretty tired but watched the Islanders win!!