day 191 December 12, 2009

Saturday-Quiet day here at Sloan. It gets really quiet here on the weekends. Today was a rough day, however in room 902. Cody is not allowed to eat what he wants. The dr today, a different one from the one we had all week, really focused on Cody letting his digestive tract settling down and chilling out. Unfortunately, this did not go over well with Cody. He loves his spicy food and is also very stubborn. The steroids do not help this situation. He nibbled on chips but he was hungry and very upset by this today. He is handling the different feeds at full strength and the diarrhea is lessening. I think we are making progress, slow but steady progress. We are hoping to get out of here tomorrow but not sure just yet. He needed a blood transfusion today which happens from time to time.