Thursday-Well, this day officially began at 12:01 am while we were still in Urgent Care. Because of the fever, there were lots of blood cultures and then that start of antibiotics. He had to get three one hour infusions until we got up to the room. That would have been at 2 am but the nurse forgot to unclamp the last infusion (I have learned a few things) and we got here in the room at 4 am. Cody slept but I did not until around 4 and woke up at 8. We met with a gastrointestinal doctor and are trying to get to the bottom of the diarrhea. It was not the 'feeds' (this is what the tube feeding is called) or anything new. Just something that persists. It is time to stop this. An xray of his abdomen was ordered for today. It came back negative, thank goodness. The biopsies from Friday's procedure did not present anything new. Matter of fact, they looked a bit better than the last ones from about a month ago. This dr still thinks it could be a bit if the rejection or it is some bacteria they are missing. Lots of stool cultures were done today too. He is still getting antibiotics and we have to watch the cultures for 3 days. I am sure we are for a few more. He is on clear liquids and we stopped the feeds, trying to give his system a rest. He is a bit cranky and crabby this visit too. Of course, he wants to eat and he was told he can't. He got a heavy dose of steroids so I am sure that is contributing to his moods.
I got a nice email from Casey today and he and Nicole might be planning to have a backyard party/wedding in 2010. That would be nice. He is packed and waiting to go home. I pray that Cody gets better so we can get out of here and stay out of here.
Thank goodness for our great friends and neighbors, the Silvino's. Our dog sitters came to the rescue again today and we are so lucky to have them in good hands. Thanks again!
Stay warm and hope to see you home soon....oxooxox
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