Friday-Today I was up at the crack of dawn, very anxious. I wanted to be showered and ready in case we go early today for the procedures. They came for us around 9:30 but Cody did not go in for procedures till around 12:45. Long wait but there was a nice guy there that kept Cody entertained. They talked about everything and had similar interests. He works here but not sure what his title is. It was a long time before I heard from anyone but they called me to tell me he was out and that they were beginning. Then around an hour into it, a nurse came and told the mediport was in. The last few things took forever, or so it seemed. Once he was in recovery, I went to a room to meet with the doctor. He did say his colon was inflamed and there was some fluid in his belly. Have to see what the pathology reports say. There is speculation that it could be the GVHD-the rejection disease but it all treatable, they say. I got in to recovery and he was awake and chatting very slowly. He turned to see me and said he had double vision. He could not feel his legs but that all came back. I sat with him for about an hour and then we came back to the room at around 7:30. The pain started to come then around the g tube. It is there and not covered and ready to go although very sore. We are not going to use it tonight, we will try in the morning. It will stretch his stomach out so they go slow with it. I hope the night goes well. He is such a strong boy and has been so upbeat throughout most of this. I am so proud of him.
The picture is of him waiting for surgery. There is a smile under that mask.
No comments:
Post a Comment