Wednesday, October 1, 2014

October 1, 2014

To say Monday and Tuesday were a whirlwind would be an understatement.  The tears have not stopped.  I am trying to be there for Cody, as I always am.  He has questions, here and there but I do not think it has fully hit him.  I do see a complete change in him but I am trying to make sure he keeps his core-his amazing, sweet, humorous character in him.  He is trying to keep busy and went to school and did a presentation.  I went to work till 12 and cried.  Thank goodness I work with the most compassionate teachers and administration in the world.  Casey and Nicole are coming next Thursday for the weekend.  Trying to figure out when my brother will come and then my dad and stepmom.  Right now, Cody just wants to be home and do his things so not asking him to travel to FL to see them.  He loves being home with his fish tank and his dogs.  We will try to do a few things here to make his 'hang out' room more comfy.  He loves watching his fish and hanging with his pups in that room.  He is eating great, actually finally he likes my chicken soup.  Made the 2nd pot last night for him.  We are working on getting the new drug, waiting for insurance approval.
He was given the all clear to go skydiving.  He is going on Sunday with some of his dad's family and his dad.  Of course, I will be there and will be so glad when his two feet are back on the ground.  He has asked each and every time we are at Sloan when he can do bungee jumping or skydiving.  He has been waiting for his platelets to be stable and they are now before he starts chemo again.
So for now, we enjoy life.  We do things Cody loves.  It has kinda been that way for almost 6 years now but there is a different plan now.  He wants to continue to do his internship with the Islanders  He loves that so I will support him.  I might be sitting alone at a few games but what the heck.  He feels good now, without symptoms and we can only hope that he remains that way for a long time.  When that changes, we work on another plan.
Thank you all so much for everything…there really are no words and I know that.  Being there is what matters.




1 comment:

  1. Say yes as much as you can to as many things he wants to do, that's a great philosophy. Hug and kiss him, feed him delicious foods, watch movies and be there to answer his questions. We are routing for you all and send love and healing vibrations.

    Diane

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