Wednesday, Oct. 8, 2104

So we are trying to make sense of all this when there is no 'sense' in it.  Cody's dr has been so good and answers each and every question with so much detail.
I will do my best to interpret.  So there is concern that the Ewing's cancer cells are in his bone marrow.  It is not blood cancer like leukemia but that his blood is sorta a highway and the Ewing's cancer cells are flooding it.  This could be the reason they platelets are not recovering.  He gets blood work on Monday so we will go from there.  Last week I tracked down the new med and now we have it and he can't take it.  Disturbing.
We are also asking about options and other places.  His dr prepared a report without me even asking and said we can send it anywhere.  I kinda am leaving that up to Cody.  He asked me to help him today and we will begin looking to see if we want to try anywhere else. His dr is searching and I am confident in that.
For now, I will focus on my time with Cody.  Casey and Nicole come tomorrow.  Casey wanted to do something for Cody so he planned a little dinner party that Cody does not know about.  I tracked down some of Cody's friends and so did Casey so it will be fun to have them altogether.  Cody will be surprised too.  We are going to the hockey game Saturday and Cody will work it.  It is the last home opener at the coliseum.
Cody was beaming yesterday!!  He got a call from his hockey player, Richard Park..from Korea!  He could not stop smiling.  I had emailed Richard and he then he took it upon himself to call him.  Such a special person.
I am so blessed to have all my support from my work family each and every day I drag my butt there.  I love all you and I am so lucky.  I cannot say it enough.
Love that my neighbors are some of my best friends too, love those Silvino's.
My FL family, my dad and stepmom, my brothers and Veronica and all my extended aunts and uncles and cousins…I wish we lived closer.  I am anxiously awaiting your visits.
I am going to read these emails again that the dr wrote and add more when I can…have a good night all.
Praying for a miracle…..