September 29, 2014

Relapse…the phone call came to Cody and they told him to come in.  When he asked if it was bad news, the NP said, "yes".  He called me immediately and I rushed home.  Thankfully, my job and the people I work with are so understanding.  Cody has new tumors in the right lung and chest wall.  It is so heartbreaking.  I am really speechless.  The plan is to stop current chemotherapy and start a new drug if all is ok with the EKG today.  The drug is pazopanib for those that are interested. Comes with side effects, including liver damage.   It is oral so we do not have to travel in.  Our options are limited.  If this works, scans in 4-6 weeks, we continue.  If not, we pray a clinical trial for new drugs opens and he can be a part of that.  The drugs are being tested now and hoping they are not too toxic for those on the trial now.  Cody is scared, he had a few questions.  He wants to continue with life, school and his internship.  It will keep him busy and he won't be home thinking about this every second.  Right now, he is not showing any symptoms.  So until he complains of shortness of breath or pain, we continue to live life, as we were told today.  Casey is coming and I think my brother will come too.  Trying to work that out.  Thank you for all your continued texts and calls and support and most of all, thank you for the love.  We need prayers, lots of them.