Friday was a long day. We got here and he needed platelets. We were here around 2. His hemoglobin was low but drs said he could wait for blood till Monday or Tuesday. We went down to radiation and were on the road at 5:15…just in time for rush hour traffic. We got home around 7 and stopped for steaks to cook at home. I made dinner, never changed out of my work clothes and Cody said he was cold. I knew it. He ate well. He went to sit in the TV room and took his temp, it was fine. He asked for a blanket and within 30 minutes he actually called me on his cell, too much pain in his radiation areas to walk, and said he was 100.3. We were told to come in if he reached 100.4. SO we packed up and were back here at 9:15. I think we were home an hour. Thank goodness no traffic.
We came to Urgent Care and the treatment we know all too well began, fluids, antibiotics, tylenol and pain meds, blood cultures and more tests, chest X-ray this time. They stopped using the mediport, just in case and he was poked too many times but they were able to get one IV in. I saw his tears this time. Then came the higher temps and lower blood pressures..the scarier lower blood pressures. The ICU drs come and said he needed to be transported. Luckily no one was here in Urgent Care so we had 2 nurses and one fellow to ourselves. I cuddled up with Cody on the bed and we did the best we could. They told me I could go take another bed but I just feel funny doing that. Finally, nurse Greg wheeled a bed in this room for me. We slept here and there between the constant blood pressure and temp checks. Not the best but I could put my head down.
Cody is sleeping now, it like night time in this room. His pressures are better and no temp as of now. Hoping we can avoid ICU as it would be across the street at NY Presbyterian again as there is no room here. With the better vitals, we are hopeful he can stay on the regular floor.
Cody talked a lot last night about cancer. He is becoming more and more worried about how he gets so sick and thinks it is from here. He actually has a tear in his rectum which is probably the source. Thank goodness we got here early before the infection had time to contaminate his entire body…..again. No culture results yet but we wait and continue the antibiotics. He's getting 2 different ones now.
Continue to pray for us..it works. Love you all!
I am so sorry that I didn't see this when you wrote it. I feel so terribly that you are dealing with your own fears and Cody's. Thank goodness he gets fantastic care at the hospital and that the staff there knows what they are doing and can assess and treat so quickly. I send you love and hugs, healing vibrations and thoughts. Too much for a child to have to face and more than a parent should ever have to. I hold you both in my heart!
ReplyDeletexoxo,
Diane