March 23, 2010

Tuesday-Early morning and a long day. Cody got IV antibiotics for pneumonia and also IVIG today. It took a while. We sat in the recliner area which is always interesting to see others and hear stories. It is also very sad and gets to you for sure. Cody put his headphones on and watched a few movies. Guess it is his way of getting away from it all. We finally saw the drs at the end of the day and talked about his frustration with food. I had emailed the dr from NYU and got the name of a gastro specialist. I think we need to take this a step further. Cody was up with diarrhea last night and then nothing today. The dr we saw today at Sloan recommended the same dr so I will get an appt. We may need to do another colonoscopy to see if there is inflammation still there. We cannot come down on the steroids until we know if the inflammation is calmed down. It is very frustrating and Cody is getting down on himself and feeling pissed about the whole thing. I hope this helps him. We are both very tired and now it is my turn to go to bed. Night all.