March 16, 2010

Tuesday-Today was a regular visit to Sloan. It took us 2 hours to get there. I heard some roads were blocked from the storms. We had a thorough visit and talked a lot about food. He really wants to eat and try new things but we still have to go slow. Dr. K told us to be careful of RSV virus. They actually lost a patient. She went to her school's basketball game and was 3 months post transplant and this settled in her lungs. There was nothing they could do. So we have to continue to stay out of the schools for now. I had wanted to do a few things inside the school but not going to happen. There was a lot of talk about what exactly we can cut back on and what we can try and what we need to adjust. It will take a long time for him to get there but he will get there. With each day, we are closer to seeing Casey so we have to continue this.

Today was nice and sunny and we sat outside after we got home. Cody has some lower back pain but he enjoyed sitting out in the sun. It was nice and warm. We just sat and watched the neighbors. Hopefully the warm weather continues....