February 15, 2009

Monday-We started out today without Cody eating, thinking he would be having a procedure only to meet with the gastro dr saying he could eat, no procedure today. The gastro dr also said it is not GVHD, the rejection disease. He did an internal on Cody and said he felt a skin tag or what might be left of a hemorrhoid. Not a big deal. So Cody ate his usual here and did ok. Then after meeting with the transplant team, they say it is GVHD. Confused yet? Now you know how I feel. I understand that no matter what kind of irritation his bowel and colon has or if it is GVHD, the treatment is the same. So that treatment means...more steroids. WIth that comes his desire to eat everything in sight and he has become anxious, biting his lip today and back to scratching his arm. With that, it was decided this afternoon that we need to start back at square one and cool his system down and that he needs to not eat for 3 days. I do not think any food is causing this as I have explained to the drs but they feel they need his whole gastrointestinal tract to calm down. This is going to be very difficult and Cody has said numerous times that he won't be able to do it. It is going to be a challenge.

The plan is to meet with all of the doctors tomorrow and discuss the treatment. I hope this made some kind of sense. It is all VERY confusing and upsetting to me but hopefully tomorrow we will get a clearer picture.