Tuesday-We were up bright and early and headed in without much traffic. We were seen right away and the procedure is for 11:30. All went well and he was in on time and we were on the road back home at 12:30. We both came home and napped. It was a long stressful morning. Dr. Kernan looks at the bone marrow under a microscope and according to her eyes, it looks good. It has to be read in the lab and we will hear those results Friday or Monday. He is gaining weight and his counts continue to go up. We are continuing with the steroid for another week or two and doing immodium around the clock to control the diarrhea he has. This just may be something he has to deal with. Let's hope not but I have seen a lot more horrific side effects so this one we can handle.
I am doing my best to keep him clean and lessen his exposure to germs. It is hard and you cannot keep a 16 year old in a bubble unless he feels really sick. We were invited to go see the Islanders practice on Saturday morning which we are looking forward to and then the game that night. We go an hour early before anyone is there and we leave once the place is cleared out. We use the VIP entrance and he hardly ever leaves his seat. I do not let him touch anything, door knods, elevator buttons, etc. Public bathrooms scare me and I cannot go in with him so we are working on a routine for that. I get nauseous thinking about it. We do our best.
Trying to figure out my world with work and it will all fall into place.
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