Wednesday, Dec 10, 2014

Cody spends most of his day sleeping.  He nibbles food and drinks very little.  I know this is all part of the process but it is so hard to watch and I feel helpless.  I do make him get up each day and I am wondering if I should be doing that.  I will check with his nurse tomorrow.  He is weaker when he walks and it breaks my heart to see all this.  I am so lucky that I always have someone with me and appreciate all the caring texts, emails and phone calls.
It is probably close to the time when I will be limiting visitors.  I apologize but it is overwhelming and I just read it can make for more confusion.  I think he is ok with the shorter visits but just know we are all trying to help Cody through this difficult time.
He is a fighter.  He got washed up today and while he persisted to get himself dressed, he exhausted himself but…he did it.  He pushes me away and wants to do most things by himself.  I get it.  It is heartbreaking.
On Sunday, Dec 14, it will be 6 years since this horrendous battle began.  I remember it like it was yesterday.  Cody fought every single minute and he continues to fight.  He has endured what most of us will never come close to even thinking about it.  He is the strongest kid I know.  He is my hero.