December 4, 2014

Thursday and a quiet week.  On Tuesday, Cody's hospice nurse Amanda visited us.  The only requirement right now is that she has to visit once a week.  She is very sweet and I like her.  There have been some tough conversations this week too.  Cody's dr from Sloan wanted to come to the house to visit and to discuss the DNR.  Cody told me that scared him and he did not want him here so we will wait.  It is all conversations we should never be having at this age.  I spoke to the Social Worker from Hospice and she came too on Tuesday.  I had her here to talk to me last week but she wanted to come to just meet Cody. The meeting went well and I think he liked her.  He showed her his dogs and fish tank.  After I spoke with Dr. Wexler, he informed me about how Cody can have a day of energy and then a day where he does eat much or do much.  He is def sleeping a lot more and some days he eats and some days he just nibbles.  It is all so scary to me and I am thankful for my visitors and company and for my sleepovers.  The quiet time is good too but also nice to have company.  Cody has not had many friends this week since the kids went back to school but I think a few are coming today.  That always makes him smile.
It is definitely a hard time for all of us.  It is a very sad time too.  My heart hurts.  I think Cody feels it is different but he still fights on each day as he should.  I support him in every way and we will remain hopeful.  Thank you all, again, for your help.  A special shout out to CFK-we are proud to be a part of your family, thank you.  We love you all.  xoxoxoxo