November 8, 2014

I am beyond words and heart is shattered.  The week came with lots of scans, PET scans, CT scans, MRI's, X-rays, and radiation began on Cody's brain for the tumor there.  He has had 3 rounds and we will continue on Monday and he will get 10 and maybe a boost of 5 more.  The chest tube is in and draining nicely which will make breathing easier and make Cody more comfortable.  So the plan is to go home today.  It is day by day and he wants to get home to see his dogs.  We have told him that we can bring them here but his doctor said there is no reason he can't get home.  His surgeon figured out a way to give him a drainage system that he can go home with. So we are leaving shortly.  I have lots of drugs, including the rescue wafers needed in the event of another seizure.  He had the grand mal on Tuesday and two more smaller ones on Wednesday.  His seizure medicine was increased and a new drug added so hopefully that will all work.  It is so scary and so heartbreaking.
The support has been amazing and so deeply appreciated.  I am lucky that way.  The support from Sloan and the preferential treatment has been unbelievable. Cody has a huge family here and the love is beyond words.   Cody has spent 1/3 of his life here.  It's our safe haven and we can come back any time, any day and whenever we need to.
We are working our schedules and visitors.  My brother and his family come Monday and Casey comes Friday and my dad and stepmom come next Monday.  I cannot be alone with him so all is being worked out.  There will be lots of sleepovers at my house.  All are welcome.  All are welcome when we come back to Sloan too.  Open door, always.
Cody has been such a fighter for almost 6 years now-Dec 14th will be 6 years that he has been fighting cancer.  He continues to amaze me every minute.  He is scared, worried, and petrified but still manages to enjoy his hot wings and smiles.  I want him to get home, even if for a day, to see his dogs.  Yes, my heart will be breaking but we will do this.
Thank you all so very much!  I will do my best to stay in touch here.  Love you all, more than you know.
PS. Huge thanks to my great friends that left work to come see us, those that just did not go to work, those that came after work, and to Tracy and Gregg thatt flew in from FL last night!  I did not want to write names here because I knew I would forgot someone.  Our days are blended together.  Love you all.  xoxoxoxo