Casey is home!! He is back in GA from his 5th tour overseas. Thank goodness!!
Cody ended up needed platelets. Sloan never called so I started the emails yesterday morning. Once we got there, they apologized and made sure to tell Cody to follow up. His platelets were very low and he got a transfusion. He is neutropenic, again very low which explains why he is so tired. We have to go back tomorrow and I am guessing he will be need blood by then. He has not had these chemo drugs for a while, before radiation. They are tough on him. (Remember we alternated cycles.) He did seem to feel a tab bit better as he was smiling more. He just feels like crap. I am sure he will smile bigger when he knows Casey is home.
He is also frustrated. He is trying to do his new fish tank and has hit some bumps. I hope we can get that worked out this weekend. He lost 5 and a half years of his life. Going from 15 to 21 without experiencing what normal kids experience is tough. In a lot of ways, he is still 15 but his brain is feeling 21. He cannot do what kids his age are doing. He missed a lot. He will catch up and end up being more mature than most his age which in some ways, he already is. We do have some interesting discussions, to say the least. I am trying!
Press on, Mama. You are amazing. I love you and pray for you and your family all the time. XOXO Mary Grace Roach
ReplyDeleteMary,
ReplyDeleteI have been in a whirlwind with the event we are holding at City Winery on 3/27/14. I am sorry that Cody's not feeling well, hope it is easily remedied with platelets and transfusions (if necessary) and that all this will be behind you both soon. Cody will come through this with all the maturity, love, sensitivity and determination he needs to succeed. It's interesting to ponder whether time froze for him, he missed out on things and might never experience much of what his friends did, but he is here, crabby, tired and yours.
Much love to you both,
Diane