I think being inpatient these few days was hard on both of us. There are so many memories there. We were happy to see lots of old drs, nurses and staff there. Cody is very popular. It is just sad and draining to be there. So many sick kids, teens and babies. The baby next to us cried a lot and it breaks my heart to hear that. So emotionally, I am spent. It is all so overwhelming.
We have a new plan. We may never know what caused the fever but it is evident that the wisdom teeth get fired up once his counts drop. So they need to come out. Right now, the plan is to take them out on Thursday IF his platelet count goes up enough for it to be safe. There is an oral surgeon in the city afilliated with Sloan and it is done outpatient with some propofal to put him out. Chemo will need to be delayed 10 days to allow the mouth to heal. If his platelets are not where they need to be, then we will try for next week, again delaying chemo for 10 days after the procedure. It is all up in the air right now and will depend on Wednesday's blood work. It scares me to stop the chemo, but his dr said it is ok right now to do that.
We also found out that the scans will be done sometime between the 5th and 6th cycle. At that time, there will be surgery to remove the tumor if needed and possibly radiation. Radiation would be for 31 days, outpatient. Again, lot to work out.
So lots to do. I need to get to school to start on the room. Trying to get things worked out here.
Here are a few pics from the stay. The one of him and I is not a good one but you can see Cody being silly, as always.
Mary:
ReplyDeleteTake a breath....pace pace pace yourself!
Rick had 16 hospitalizations since his heart attack.
I was there day and night through each of those stays. So, I honestly can relate to your inpatient experiences. All I can say is that you have to find grace in the middle of the circumstances ...and thank God for giving you the strength and determination to keep doing what is so very physically and mentally challenging.There are reasons I send angels to you periodically....because as humans, we need bolstering. I know Rick and I are not family..but friends from the distant past...but we do care about you and Cody and the entire family. We just want you to know that...you can do this....and there is no reason to believe that you shouldn't ask for and expect your miracle. Hopefully, God will receive your wish and our prayers...and in the interim, give all the continued strength to "do what it takes"!
So, here is an extra angel for you..coming with our love.
Barb
Thank you...that was really sweet...trying to type through tears..You should have heard the pep talk from dad this morning...LOL
ReplyDeleteYou are a great writer...
I think just being back in the hospital brought it all back to me...we spent a lot of time there..a lot.
We are lucky everyone is sooooo nice and caring there.
I will do this, I know have to and I know I can. Just tough times some days..for sure.
Thank you....xoxooxoxx...Love the angels..
Mary
Mary,
ReplyDeleteGlad to hear you are home! Nothing better than your own beds, foods, pets and friends to bolster you and keep your spirits up. The hospital is a scary place and it is hard to keep smiling in the midst of everyone's collective pain. It's great to see Cody being silly, I hope he will continue to find ways to make faces, eat crappy food and push himself to health. I'm hoping his counts will stay good so he can get rid of those teeth and get back on schedule. I can come help you set up your room, I'm not doing anything at the moment so I'm always looking for something to keep me busy! I'm good with glue and staples and sparkles!!
Call on me any time you need help,
xoxo,
Diane
Hi Diane,
ReplyDeleteThank you...Yes, I hope he keeps being goofy!! He needs that. And it keeps me smiling too!
Thanks for your offer. Just not sure when I am going in. A few from work said they would help too so I should be good.
Thank you...xoxoox
Mary