His pic line was oozing last night and he was all worked up. He has the skin rash again so I really wanted to see about taking this out. After a long and stressful discussion, the pic line was pulled. He is not longer doing the daily infusion at home. We will see how it goes. He is set for a mediport on Monday. We were in discussion about whether to get the port or not. The port is under the skin and allows his freedom without being accessed except for when we need it to be like at the hospital. There is a lower risk of it getting infected since it is not accessed and under the skin so lower risk of bacteria. We thought long and hard about not even getting this as it is surgery but to worry about getting IV's in every time we go to the hospital would add more stress and anxiety. He is very anxious lately. We did not get to speak to the psychiatrist as she was away today. We are giving him a little more of a medication for anxiety. This could also be heightened because of me returning to work. He says no, but it could be.
His foot is still bothering him so an MRI was ordered and we got it for today at 5:30. That meant a huge break. He was upset because he could not get to Best Buy to get the new video game he pre-odered. So calls were made and we were supposed to be able to pick it up in the city at Best Buy. We hopped in a cab and were pleasantly disappointed when after we were told we could get it there, we could not. More stress and disappointment for Cody. So I grabbed a quick slice and we headed back down to Sloan. Finally I got him to calm down and take a nap while we waited for the MRI.
We did not get home till almost 8 but we did get the video. He played till around 10 and we called it a night...Phew-LONG Day...
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