Wednesday-Long day at Sloan today for IVIG and pentamadine. We are cutting down of the steroids and found out that I was actually coming down too quickly with it. I miscalculated the dose. It was all ok and he is doing fine. He is very worried about any kind of rash for fear it is GVHD of the skin which it is not. He is worried about not wanting to eat too much lately and he lost a half of kilo. He just seems a little stressed lately.
Tonight I talked to Casey and he has some time off, actually more than he thought so I am trying to get him here. It would be good to see him since we will not see him over the holidays. Maybe he and Nicole would drive here. It would be a huge pick me up for Cody.
Pretty good day overall and a good dr visit.
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