October 26, 2010

Tuesday-We got up early to get to Sloan so that we could be done in time to go to the boys soccer game. We had a great visit. Dr. Kernan was pleased with everything. She said he could go back to school in January. That brought a huge smile to his face. He was thrilled. We talked on the way home about it and he anxious. We are going to meet with the asst principal and the guidance counselor to discuss what it all entails.

Dr. Kernan also said Cody's fistulas are healing nicely which is a good thing. I really am hoping to avoid that surgery. He has a sore ankle but no xray is needed. She does not want to try the new drug for bone strength as she has really looked into and he is doing well without it. Maybe in a few months we will see but for now, we are being careful not to rock the boat. We are talking about the longer span between visits so I can do one at Winthrop after work. We came down on the steroids and the GVHD drug. He has a little rash and he is worried about GVHD of the skin. It is not that but he is worried. This happens more with him.

He is eating and his weight is steady. He needs to eat a little more to get his weight up.

Overall, a good day. We made it back to see the soccer game but they lost and it was not a good game. Sorry boys.