April 13, 2010

Tuesday-We got a late start today. We were up a bit last night with the blood sugar issues and after today's appt, I hope it will be worked out somewhat. We got to Sloan and Cody had fun showing off his photos from last night. He was in a good mood but tired. We had trouble with his mediport so we had to wait even longer, just for blood results. We got a plan for the blood sugar issues and hopefully it will work. We are making adjustments so that he can get the most calories from his feeds and IV nutrition without sending his sugars so high. He is like a science project. Listening to the drs today, you really have to know your math and be able to do calculations. Let's hope it works. We will find out tonight. We had some time so we went to the cafeteria to eat and he tried a burger. It just seems to get stuck in his throat. He gets so upset and just can't eat. It took us a long time to get home, he napped in the car. As for me, I am pooped and am sitting here at 10 pm waiting for his meds to be delivered. UGH. We do not have to go back until next Wednesday. We are skipping the next two Tuesdays for family birthdays.

Enjoy the pic and look closely. This is what steroids do to you..