So a little bit of a hectic day. We finally spoke to Cody's oncologist and he said the plan is that Cody returns on Monday and then we will check counts. He is not sure how Cody will do. These drugs are not supposed to be so immunosuppressive so he may continue with chemo next week, after all. Crazy few weeks for sure.
Today I stood in for Jim. He called me around 12 and said Matisse had a fever of 104 and that is non speaking english grandparents were bringing him to Sloan. Jim is in NC and Matisse's mom was working downtown. (No further comment needed there.) I waited for them to come and Matisse got his bloodwork. He sounds like he has some kind of bug. His counts were good so they quickly sent him home. He no longer has a mediport and is off treatment so he did not need to be there. He was more dangerous to the patients there. Cody had left and came back to take a nap. Matisse was ok and left.
I am proud of Cody for sitting in a focus group tonight. He was with his social worker and another coordinator and about 10 teens/young adults with cancer. He enjoyed it and offered lots of feedback and maybe made a new friend. He is so good with all that.
Still figuring out plans this week but may go home tomorrow for the night and return Friday. Not sure as he is trying to meet a friend here tomorrow evening. Just working out details. I could use to go home. I have to go get clothes for the big fight on Saturday anyway.
Hope everyone has a good night…..I'm pooped!
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