Wednesday-Sorry for not posting yesterday but the reception was bad. So maintenance chemotherapy did indeed start yesterday. Cody is getting irinotecan by IV and then temozolomide orally. The original plan was for 10 days of this but with his history from the last drugs, the team decided to do 5 days of it for this cycle and see how he does. I think he was a little nervous but so far so good. He is on another antibiotic and now charcoal to help his gut adjust to the new drugs.
Tonight he was asked to be in a teen/young adult focus group. They will have dinner and then have a discussion. I think that will be great for him.
He was asked to be the honored guest of the boxer, Daniel Jacobs for his title fight this Saturday night. Daniel is a 2 year survivor of osteosarcoma and work with the Ronald House. We will be going with 2 people that work here and they are getting us a limo. We might go home for tomorrow because now we will stay here Saturday night too to go to the event. He gets VIP access, whatever that means. Here is the link for the article about Saturday: http://www.thesweetscience.com/news/tss-press-releases/19091-golden-boy-fighter-daniel-jacobs-to-make-cancer-patient-wish-come-true-on-fight-night
If you google his name, there is more info about his illness. We are looking forward to it. I am not much into boxing but the experience will be awesome.
Ohhhhhh and last night, we stopped in the little candy store for my ice cream addiction. I know it was someone but could not place the family. It was Neil Patrick Harris with husband and the most adorable twins. He did not say much and was kinda keeping to himself so I did not pressure him for a picture. His nails were all polished different colors and he had a hat on. When he stepped outside he put sunglasses on. It was kinda neat! I get star struck and Cody gets embarrassed by me…LOL
So today we are heading back to Sloan around 11. Cody is still sleeping and I guess I will go get some breakfast. Keep your fingers crossed for a smoooooooth week. Love you all!!!
Special thank yous to our neighbors for taking care of the fish and for Moira for taking our pups. I know Bern offered too, so thank you. We are so lucky to have ALL of you at our fingertips!!!
And Happy Anniversary to my dad and his bride, Bonnie…(it is either today or tomorrow, I always forget the day!)
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