Yesterday Cody went to NYC for his appt via car service. He did well and signed his own consent forms for his procedure today. He felt proud I know! His potassium levels were off but with some hydration, he was fine. As a result of that and from today's numbers, we are adding fluid to his tube to get an extra liter in.
He did well today with his endoscopy. The surgeon, Dr. LaQualia said it all looked fine inside and asked why we needed to do this. We still have to wait for biopsies to come back but it looked good. His fistulas are healed which says a lot. He is making his own b and t cells which is also a good sign. I feel very relieved and know this great path will continue. We had a long day, with getting up at 4:30am. We both napped today and are pooped tonight.
To be continued....
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