August 3, 2010

Tuesday-We slept a little later today and headed in around 10. Cody's cousins met us there. One of them wants to be a nurse so Cody showed her around and we introduced her to a NP to talk to. They waited while we saw the drs and then Cody vomited. We took a little more time and waited for his counts. All was good except magnesium was very low for some reason. So we had to get a dose of IV mag and then we took some oral ones home. Unfortunately we have to go back on Thursday to get that checked. We did come down on the steriods, again we have to taper it.

The NYU dr called and told me her plan and as of now it is really just increasing one of the meds for a 2-3 weeks and we will go from there. We decided to take Cody's cousin to Dylan's Candy Bar and then we got a late lunch. They wanted to do another thing in the city and Cody was upset when I told him he could not go. He got really upset again. He calmed down and tonight he reminded me of that letter he wrote me on Mother's day. I know it is hard mentally and it breaks my heart that he cannot be normal. We cried tonight and he is better. A bunch of his cousins are coming this weekend so I hope he can get some time alone with them. I explained how hard it would be if something happened and his back went out or worse the bathroom issue. His cousins would not know what to do and he would be devastated. So we are working on it...long road and still far to go but we will get there...LOVE YOU CODY!!

We both miss Casey so much and I know Cody wishes he could talk to him more. OXOXOX