Thursday-Well, we had to go back to Sloan today to get bloodwork so see how he was doing. He is still off so we had to change the fluids again. The drs are concerned that he is not eating and we worked out a plan. We cut back on the feeds to see if he could be hungry. We are hoping they are making him feel full and not want to eat. So the hope is maybe with them off during the day, he might eat a little. It was upsetting and frustrating and we are so tired of it. He did well without many trips to the bathroom and now we just need to get him back to eating. The steroids are down so we are hoping that they will not go back up to increase eating. We got home early and went to Chipolte again, his choice this time. He managed to eat 2 bites. Better than nothing and it is a start. I am hoping tomorrow is better. We went to the barber and Cody got a mohawk again. it is really cool! We came home and took the dogs out again and then the Spanish tutor came. He really likes her too. They had a good time. She works well with him.
I got a package today from my friend Corinne's family. It was from her husband, Michael's mom and his sister. What a surprise and so sweet. It was a bracelet and gift card for Mother's Day. It is amazing to know how many people that think of us and that care about us. It was a beautiful card and I cannot wait to see them to thank them personally. Thanks again!
Have a good night everyone. oxoxoxoxo
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