May 4, 2010

Tuesday-We had a long day. We were at Sloan most of the day and then at the end, his electrolytes came back off. They did a quick urine test and found out that he is getting too much fluid with the feeds and then the IV fluids at night. So we are cutting back on the fluids and we have to go back on Thursday (ugh) to get checked. We had changed a few meds and added one that he was on and we will see how he does. He has been tired more but I think that just comes with the disease. It is hard now sitting there all day and we do not have to be so confined. We are seeing all of the other kids with cancer and it is hard to take in. It is really sad too. We have seen it. Cody does well there and talks to the therapists. Today it was a music/dance therapist. He likes his nurses and is pleasant. So let's hope the new dosage will clear up the thrush in his mouth and maybe he will want to eat more. He is such a trooper. Tonight while tucking him in, I said to him how strong and amazing he is. I said I know this sucks too. His reply "mom, it could be worse". This is the way he gets through this. Stay that way, my boy.