day 174 November 25, 2009

Wednesday-Thanksgiving eve. Our night last night ended with Cody vomiting and having diarrhea. He was very weak and went to sleep early. Today he woke up around 11 and did not eat and was still weak. Barely drank. Went in for a 2 hour nap. All this time I was emailing and calling the drs. I got my point across and told them that if he is getting a GI feeding tube then we cannot wait a month for him to 'get on the schedule'. Still felt weak all afternoon and the mental part is not good. He feels like a failure for getting the GI tube. He keeps making sure I do not think he is a failure. After a stressful day, we are going in tonight or in the morning. I feel he needs maybe some hydration or something. I cannot go through another day like today. I cannot imagine going through a month of trying to make him eat. Hopefully he will be put on the schedule soon and we can start an uphill track. It has been a long year for sure.

I will keep you posted.