day 95 September 8, 2009

Tuesday-Today we were off pretty early. We ended up waiting till 2:30 for the spinal and biopsy. Dr. Kernan did not do the biopsy because she had to leave for her daughter so Dr. Boulad did it. She saw my disappointment.

We talked today about how to deal with this diarrhea. We are doing the meds around the clock, lucky me and hopefully this will kick it or we will need to do further testing. We did not get home until around 6 and Dr. Kernan called to say that the spinal fluid was negative. There were not white blood cells in the fluid which is a good thing and we are waiting to hear back about the HHV6 virus but she thinks that is good too. We would like to stop the antiviral med so once the MRI is negative after Thursday, then maybe we can do that.

Cody was pooped and went straight to bed at around 6:30. I will have to wake him lots so it is fine and he was a little groggy too. He did good today and glad that is over.

I hope the first day back to school was good for everyone. I really did miss it!