day 110 September 22, 2009

Tuesday-We started out very early to get to the city on time. With all the world leaders at the UN building, we anticipated a long ride in which we got. We were seen right away and we started with our diarrhea concerns. We saw Dr. Boulad this time and I feel like we got some answers. We are coming down on the med that is supposedly causing it. We are adding another anti med to help with the nausea which reappeared. We think this is from the anti viral that we stopped. Poor thing but hopefully it will be under control.

I did not speak to the psychiatrist. We were in and out by noon so she called me later and I discussed my concerns about his social interaction and his attachment to me. I am not rushing things but I have noticed that he is still very dependent on me and that it is hard for him to socialize with his peers. It will come in time. He has a lot to worry about and some things would be so devastating if it happened in front of his friends, nausea and diarrhea. It would be devastating to me! So we are watching this closely and we will go from there. There is still the memory loss and he looks for me to fill in the gaps. He and I have been through this 24/7 and it makes sense. I know the infection set him back and it just takes time. I have reached out to some support from CancerCare so hopefully that will give me some guidance.

We went to the soccer game and they won, again. Cody is becoming their good luck charm since they lost the game we did not go to. He has fun and goes on the field with the coach and team and he is all smiles for that. I am not sure he likes sitting in the stands with all the parents but he does it and he is fine with it. Such a good boy!!!