Day 56 July 31, 2009

Today marked 66 days at Sloan and we left to head to the Ronald McDonald house. Cody was up at the crack of dawn. On a typical day at Sloan, the fellow, Dr. Gearing would come in and wake us and ask how our night was. Well, today we were awake. He came in and talked to us and then handed Cody a card and some of his favorite candy. He is a sweet guy and before he left Cody asked for his email address. He is about 28 years old and really connected with Cody. Just one of the amazing people we connected with there. Cody ate his breakfast and we waited for the discharge papers. Cody asked everyone that walked in if we could leave including the cleaning girls. We finally walked out around 2:15. We hailed a cab and Cody was thrilled. He sat very quietly in the car but I knew he was happy but also scared. We checked in and he seemed much better. Lots of medicines and supplies arrived. A good friend from work, Kate Schmitt came and brought us some goodies and hung out with us. It was nice to have her and helpful. We waited for the evening nurse to come and help me hook up some meds to his IV and I disconnected one already myself and will do the other one in the morning. There is a lot to do for sure. I am nervous but I know that we will do fine. As I write this, Cody is sound asleep and snoring. We head back to the clinic on Sunday and then again on Tuesday. Looking forward to this phase of Cody's recovery. You realize just how lucky you are. I talked with a mom who I have seen at the hospital and she and her son were released yesterday. He has chronic leukemia and was at Sloan since January. Makes our 2 months seem like nothing.

Our 2nd phase has begun and we are ready for it!!!