Day 40 July 15, 2009

Cody is on a drug, anti viral for that horrible HHV virus. It was supposed to be for 14 days but Infectious Disease wants it for 21 days. He is scheduled for the MRI with anesthesia for tomorrow. We are weaning him from some of the steroids that he was put back on. Today Casey and Nicole came along with her parents. A cousin from PA came too. Honestly it was too much for Cody. I noticed his scratching and then he began biting his lip. He was never like this and I hope we get past this too. He was given the anti psychotic, at a low dose and it does work. Only later do I find out that we are stopping that one because it is contributing to his low heart rate. I am worried about the night without it, but they assure we can give him others. He is a tall and strong boy and I just worry that I might now be able to handle him when he gets in a mood. Today I stepped out and came back and he has his shirt off and his bandage to his line. These kinds of things I worry about. He seemed glad to see his brother although it is hard to get a smile out of him. But I think just hearing him talk and knowing he is here is good for him.