day 22 June 26, 2009

Friday: The day started out ok but ended in a nightmare. Cody has been itching his arm and it has gotten out of control so we have been trying to treat it all day and to make him comfortable. We ended up with a bigger dose of benadryl and a numbing topical called lidocaine. I had noticed throughout the day that Cody seemed to be asking me odd questions or would ask me the same questions. He would not realize this either.

He slept most of the day but did get up and sit in the chair. Around 9 pm he started asking me some questions that he should know the answers to-like how many days have we been here? What do I have? We started talking and he told me he was terrified and that he thought he was here because of an accident. It got scarier and scarier. Then when I told him he had a transplant, he cried and wanted me to get in bed with him, if I was allowed-so sweet. Now we were both crying. Finally the team came in which included neurologists and he tested perfectly. Because of his low platelets, a CAT scan was ordered to rule out any bleeding in his brain. THANK GOD, that was clear. They have a unit here called Pediatric Observation Unit which is 3 beds with 2 nurses and a nurse practitioner and they put us in here for the night. It was about 3 am when we got here. Once we got settled, it was time to get up. We are scheduled for an MRI in the morning.