Day 117 September 29, 2009

Tuesday-Last night was rough with the diarrhea and vomiting. It was 4 times in one hour. I knew in the back of my head we would end up being admitted today and here we are. Tough ride in with stops along the way and then a long day of waiting but we are here. Tomorrow we are scheduled for a colonoscopy and possibly an endoscopy to rule out GVHD-graft vs host disease. It is treatable so I am told but I feel scared. I hope they are telling me everything. Say an extra prayer tonight.

day 116 September 28, 2009

Monday-We had an uneventful day and went to physical therapy. That wore Cody out but so good for him to get out. Kate Schmitt from school stopped over and brought us a pumpkin and a pumpkin pie! It was a nice visit. Good to see her and to catch up. Thanks Kate.

Day 115 September 27, 2009

Sunday-We woke up to rain here today. It was kinda nice for a Sunday and a day to do nothing.

We relaxed most of the morning. We worked on Cody's homework and then took a ride to get ices. He seems to eat a little of the Rita's lemon ones so off we go. We rented a few movies and just relaxed most of the afternoon. I try to get him out a little each day, no matter what it is. I wanted him to watch "Old School" since he loved Will Ferrell and never saw it. He enjoyed it.

He actually took 2 baths today. He managed to eat a few bites of soup and toast today. I will take it.

day 114 September 26, 2009

Saturday-The morning did not start off too well. Cody was sick to his stomach. He was up a lot last night with diarrhea. I am worried. We planned to go to the soccer game and do the pizzas Cody wanted to do and we did make it. It was perfect weather out and he was good through it all. He got to hang with his team and he smiled a lot which made me happy. Some other friends were there and he sat with them too. We had a great time. We got home and he took a nap. I went to get his meds and it just hits me at odd times and I lost it. I feel so bad for him. I do wish it was me so he could have a normal life. I am scared and I keep praying. He was up for an hour, took a bath and is back in bed as I write at 6:24. He said it was a perfect day!

day 112 September 24, 2009

Thursday- we started with the math tutor today. He was the same one we had last year so we were thinking it would be a good thing. However, Cody was overwhelmed and not so sure this is going to work. We were supposed to have Spanish later but we cancelled it for today. I do feel bad and emailed the counselor so we are working on a plan. We ran a few errands today and walked around at the mall. I am trying to force him to get out a little once a day. We took a ride over to the school and saw the soccer team. He saw one of his friends too and we we went to see her. I will do anything to brighten his spirits.

day 111 September 23, 2009

Wednesday-Today we did a little visiting. We went to get pizza with my 2nd grade teacher friends. Cody did not eat but he wanted to come with me. Then I stopped over at the SooHoo's to meet Mary P and to see her baby. He sure is cute!! Then we came home to have Social Studies. We met this teacher last week and Cody was anxious about the workload and wanted me to talk to him without Cody in the room. I had already emailed him and explained the situation. It is all good and they are more than understanding. We have math tomorrow and spanish. Hopefully that will go ok too. We are still dealing with the diarrhea but the nauseous is much better.

day 110 September 22, 2009

Tuesday-We started out very early to get to the city on time. With all the world leaders at the UN building, we anticipated a long ride in which we got. We were seen right away and we started with our diarrhea concerns. We saw Dr. Boulad this time and I feel like we got some answers. We are coming down on the med that is supposedly causing it. We are adding another anti med to help with the nausea which reappeared. We think this is from the anti viral that we stopped. Poor thing but hopefully it will be under control.

I did not speak to the psychiatrist. We were in and out by noon so she called me later and I discussed my concerns about his social interaction and his attachment to me. I am not rushing things but I have noticed that he is still very dependent on me and that it is hard for him to socialize with his peers. It will come in time. He has a lot to worry about and some things would be so devastating if it happened in front of his friends, nausea and diarrhea. It would be devastating to me! So we are watching this closely and we will go from there. There is still the memory loss and he looks for me to fill in the gaps. He and I have been through this 24/7 and it makes sense. I know the infection set him back and it just takes time. I have reached out to some support from CancerCare so hopefully that will give me some guidance.

We went to the soccer game and they won, again. Cody is becoming their good luck charm since they lost the game we did not go to. He has fun and goes on the field with the coach and team and he is all smiles for that. I am not sure he likes sitting in the stands with all the parents but he does it and he is fine with it. Such a good boy!!!