Cycle 9 is complete. Cody got the 2 day checmo this past week and got home yesterday. He has some jaw and bone pain from the vincrisitne. He seems a little wiped out which I am sure he is. Looks like a quiet weekend here for him and I have lots to do here at home. Been kinda neglecting things.
TGIF friends..enjoy the weekend. Hoping it is a quiet one here.
Friday, March 21, 2014
Monday, March 17, 2014
March 17, 2014
Long and early day. We were at Sloan at 7:15 am. Bloodwork was fine so chemo started around 9. He got three drugs today and did well. We had a quiet day and then they had a St. Patrick's Day party on the 14th floor (recreation room for adults). We played a few games and had a scone. It was fun and keep us laughing for a few. I hated to leave him but his dad was there. He will get 2 more drugs tomorrow and then hydration Wednesday and Thursday. He may even get home on Thursday.
We had an amazing time at the event Friday!
Contractors For Kids knows how to throw a party!! They had over 1000 supporters there! It was so fun. Cody gambled and I got to dance a little. They put us up in the Hyatt for the night and we were treated to a yummy breakfast in the morning. We made some new friends and enjoyed seeing all the professional athletes and actors and an actress too. We love our CFK family!!! Thank you!!
Happy St. Patrick's Day my friends and family!!
We had an amazing time at the event Friday!
Happy St. Patrick's Day my friends and family!!
Monday, March 10, 2014
3/10/14
Monday- so we were up at 5 and in the city by 7. Cody got his bloodwork done and his platelet count is not up enough for chemotherapy. He also has a cough and his chest did not sound so great so we did a chest X-ray. It was clear other than showing signs of a virus. So let's hope all stays quiet here. Hoping to keep him strong so we can go to Contractors for Kids event on Friday. Keep us in your prayers. Thanks!
Wednesday, March 5, 2014
3/5/14
Best news we have had in a long time! Cody's tumor is dead tissue and there is no evidence of cancer. The treatment is working. The challenge now is to keep the cancer away. We could not be happier!! While I was at work, I was in on the conference call with Cody, his dad and the doctor. Some parts were hard to hear and I will need a discussion again but I did happen to hear what I needed!
Cody's platelets are still recovering so chemo will wait until Monday. So he has a nice little break to celebrate.
The love and support from each and every one of you is amazing! I am so blessed. I know there are lots of you praying and you have your extended families doing it too. We feel it! My son is an amazing fighter but with your help, he succeeded.
He has a long way to go, more chemo and more scans in 3 months. He will do it! We need to keep this cancer AWAY!
Thank you all, near and far, family, friends and those we do not know. We appreciate all of you! XOXOX
Cody's platelets are still recovering so chemo will wait until Monday. So he has a nice little break to celebrate.
The love and support from each and every one of you is amazing! I am so blessed. I know there are lots of you praying and you have your extended families doing it too. We feel it! My son is an amazing fighter but with your help, he succeeded.
He has a long way to go, more chemo and more scans in 3 months. He will do it! We need to keep this cancer AWAY!
Thank you all, near and far, family, friends and those we do not know. We appreciate all of you! XOXOX
Tuesday, March 4, 2014
3/4/14
No news yet..but should happen tomorrow morning and of course, I won't be there. Not happy about this but will be waiting for my phone call. I will update when I know..thanks for all the support!!! XO
Monday, March 3, 2014
3/3/14
Scan day. We got into the city last night because of the impending snow that never came. Oh well, what can you do? Yesterday we went to the hockey game. Cody wanted to give his player a shirt and bracelet. So I called our sweet Ann and asked her if it could be arranged for him to personally give it to the player himself. It was really a pick me up for Cody and he was beaming!! Pics are below...
We got up early and got to Sloan around 8 and the bloodwork started. Then we were off to the 2nd floor for an echocardiogram. Then off to another part of the 2nd floor for CT and PET scan. Then up to the 11th floor for the MRI. Cody was good but seemed nervous. He did well. I noticed it was taking longer than normal for the MRI. I heard the radiologist talking about a patient and it was Cody. Apparently they did the wrong MRI so he needed to do another one! Yep, 2 MRI's. It was now past 1:00 and he had not eaten and we would miss our appt with the dr. We were set to see the dr at 3:00 so we left to get a slice of pizza. We finally got into the dr around 3 and no results yet. Well, the CT was back and there was one spot there but it appeared to be an infection and not Ewing's sarcoma. We will get more results tomorrow, hopefully. Cody's platelet count was not high enough to start chemo. So he came home with me and he will go back on Wednesday morning to check again. This is the 2 day chemo so he could do it Wednesday and Thursday and hydrate over the weekend. So hoping that all works out for all of us. I am pooped beyond words. I am sure he is too. Will update again when I know something.
Thank you for all the prayers today…I know they are working!! XOXOXOX
We got up early and got to Sloan around 8 and the bloodwork started. Then we were off to the 2nd floor for an echocardiogram. Then off to another part of the 2nd floor for CT and PET scan. Then up to the 11th floor for the MRI. Cody was good but seemed nervous. He did well. I noticed it was taking longer than normal for the MRI. I heard the radiologist talking about a patient and it was Cody. Apparently they did the wrong MRI so he needed to do another one! Yep, 2 MRI's. It was now past 1:00 and he had not eaten and we would miss our appt with the dr. We were set to see the dr at 3:00 so we left to get a slice of pizza. We finally got into the dr around 3 and no results yet. Well, the CT was back and there was one spot there but it appeared to be an infection and not Ewing's sarcoma. We will get more results tomorrow, hopefully. Cody's platelet count was not high enough to start chemo. So he came home with me and he will go back on Wednesday morning to check again. This is the 2 day chemo so he could do it Wednesday and Thursday and hydrate over the weekend. So hoping that all works out for all of us. I am pooped beyond words. I am sure he is too. Will update again when I know something.
Thank you for all the prayers today…I know they are working!! XOXOXOX
Saturday, March 1, 2014
Saturday, March 1, 2014
Cody's counts were good yesterday and he did not need anything. We are still trying to work out the details with his drs regarding the protein in his urine.
Cody raced his cars last night and was there for a long time. I had a nice dinner out with good friends, Jean and Mike. It was nice to just relax. Today will be a busy day here just doing laundry and such. Tomorrow we are going to have to get to NYC and stay over due to the snow coming. Cody has his scans beginning Monday morning. Lots of positive energy and prayers needed. I already have that knot in my stomach. I am hopeful that the radiation did help shrink that tumor even more and perhaps even kill it. It will always be there but in time, hoping that it is dead. Some time when all this is over, I think Cody will want to get it totally removed. I have to agree with him there.
I will update once we know the results. I am hoping too that I can get back home on Monday night..thank you all for your continued prayers, thoughts, and love. I mean that.
Cody raced his cars last night and was there for a long time. I had a nice dinner out with good friends, Jean and Mike. It was nice to just relax. Today will be a busy day here just doing laundry and such. Tomorrow we are going to have to get to NYC and stay over due to the snow coming. Cody has his scans beginning Monday morning. Lots of positive energy and prayers needed. I already have that knot in my stomach. I am hopeful that the radiation did help shrink that tumor even more and perhaps even kill it. It will always be there but in time, hoping that it is dead. Some time when all this is over, I think Cody will want to get it totally removed. I have to agree with him there.
I will update once we know the results. I am hoping too that I can get back home on Monday night..thank you all for your continued prayers, thoughts, and love. I mean that.
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